Hi everyone, I am 51 and have been diagnosed endo 4 for many years, having ovarian cysts on both side, they are about 4 and 5 cm. I tried IUD before but only made it worse, so that was taken out. Lately the pain has been increased so I am revisit the idea of surgery. My doctor suggested me to remove both of my cysts and overies, but I done some research, overies are important even I am perimanopause. But only removing the cysts would be very difficult as my condition with Endo, so it won't be a… read more

Hello, new here, 25 yrs old. I found this site researching endometriosis. I’m really happy knowing I’m not suffering alone, even though I do wish none of us had to suffer. I started Visanne in March this year after visiting my gyno, she told me I had endometriosis which explained those awful debilitating, excruciating fainting pains. I started Visanne about the week after, however my period hadn’t started yet, she did say I could take it nevertheless. My period pains usually last two to three… read more

Hello everyone
Did anyone take the visanne and didn't feel any better about the pain?
I took it for 3 months but my endometriosis pain is still the same

When did they schedule your post op appt to review everything with the surgeon? Should I do that now so I dont have to think about it or risk waiting too long after surgery? Or did they automatically have an appt tome set up for you aftet the surgery as part of the process? Thanks in advance!!

Hi all,

Don't know if I just need to vent but some advice would be appreciated too. I had my third Laparscopy towards the end of May this year. The removed endo from the Pouch of Douglas and Pelvic Wall. After previous surgeries I have generally felt a good bit of relief in the coming months. I also have PCOS. I'm not feeling as much relief as I thought I would by now. This month has been horrific. I had two full weeks where I felt "periody" and had PMS bloating, moods, cramps etc. I finally… read more

What resources did you use to find a good surgeon? Were you worried about their skill before you went under? How did you evaluate them to feel comfortable with them? I’m developing technology for surgical skill performance tracking and am curious if this is something that would have helped you when picking a surgeon. My sister had to have endo surgery after struggling with infertility after baby #1 but is now pregnant with #4! I am particularly passionate about helping women find good surgeons… read more

Been having this for last couple of weeks, ive been having prostap injections for 5 months and have a coil, any ideas what it could be? Im sure its not gas! I have 2 kids so i know what its like when a baby kicks and it feels exactly the same

Did anyone else have a pre surgery assessment on the NHS?
What was it like and how soon after did you get your surgery date?

Has anyone had an On-Q pain pump installed in their abdomen at the end of surgery? It delivers a local anesthetic in steady doses over the course of 4 days:

https://myon-q.com/on-q-pump/

My surgeon is recommending it due to my very high pain levels. If you've used it, did it help you? And how far out from the installation site did it provide pain relief? Did it only numb your skin/incision site? Or did it also help with abdominal wall pain from having endo removed from the abdominal wall… read more

I am new to this and have been going to doctors with pain since January this year. I finally was referred and went to my OBGYN in July. She diagnosed me with Endo and said to take constant contraceptive pills for 6 months to try to manage the pain. So far I'm only 7 weeks into the 6 months and I'm struggling with the pain more and more each day. It's effecting my work and my relationship and I don't really understand enough about the diagnosis yet. Should I still wait it out and go back in… read more