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Laparoscopy?
A MyEndometriosisTeam Member asked a question 💭

After 2 years of trying different pills and ultrasounds showing cysts my doctor is confident in the endometriosis diagnosis. I am as well, but she wants to skip the laparoscopy and go straight into Lupron injections to prevent scar tissue. Has anyone else gone without the laparoscopy? I know scar tissue is an issue but I'd also like to have a confirmed diagnosis and to have adhesions removed. Will it get bad enough that I'll eventually have it and I should just wait for that?
Thanks!

posted April 3, 2016
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A MyEndometriosisTeam Member

A laparoscopy is the only way to get a definitive diagnostic, however you can get it purely as a diagnostic operation without excision to find out if it is actually endo and if it is what stage endo you have, i had a lap for diagnostic turn treatment/excision (with my pre-op approval 1st) but i was also stage 4 (severe) and riddled with it. Return of endo later is dependant on what stage endo you have. And from being raised in the medical back and all the dramas i went through getting my diagnosis id suggest you stick with your gut of wanting a proper diagnosis 1st especially with medication as serious as lupron, there are other conditions that can imitate endo symptoms such as fibroids and polycystic ovary syndrome. Do some research on your options, other peoples experience may help you decide to but the choice of what to do is ultimately yours, and DO NOT let a doctor pressure you in to particular decisions. Good luck, youll need it dealing with endo decisions.

posted April 4, 2016 (edited)
A MyEndometriosisTeam Member

Oh and dont wait till eventually its bad enough you have no choice, the sooner you get it sorted the more of a chance youve got of eradicating it for good. :)

posted April 4, 2016
A MyEndometriosisTeam Member

After my insurance paid it's part I would have paid almost 5k for lupron and then I would still have to have the surgery anyway within 2 yrs. OR I could see an expert excision specialist with an 85% chance of never having surgery again (if I do it will be bc of adenomyosis not endo) so I wasn't willing to put my body thru the torture of lupron like my mom (who adopted us all and never had her own kids due to poor surgeons) and I'm very glad I didn't do lupron bc later it was found I had thyroid disease and lupron and it's similar drugs are very bad for the thyroid. Remember in life, you get the quality you pay for.

posted April 4, 2016
A MyEndometriosisTeam Member

Well you will have to travel if you want it fixed. I drove from FL to GA and Dr. Ken Sinervo is one of the top surgeons in the world for endo and he wasn't in network either. I'll take my DD there too. I will not have her suffer like I did, my mother did, and you will. You can still join Nancy's Nook and look and see if there is one in network but they will be farther away than 250 miles. Good luck in your search.

posted April 4, 2016
A MyEndometriosisTeam Member

Unfortunately Dr. Yueng is 250 miles away and not covered by my insurance so he's not an option.

posted April 4, 2016

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