How Do You Usually Respond To The Comment "You Don't Look Sick"? | MyEndometriosisTeam

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How Do You Usually Respond To The Comment "You Don't Look Sick"?
A MyEndometriosisTeam Member asked a question 💭
posted March 27, 2017
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A MyEndometriosisTeam Member

I reply sarcastically, usually. Typically along the lines of "Oh! I'm sorry, I didn't realise sick had a specific look to it. Please tell me what it looks like so I can make more effort in the future". Or if I really can't be bothered I just say "Well, you don't know what 'air' looks like but you don't question its existence". Not the response some people would choose I'm sure, but I get so sick of hearing it that sarcasm just makes me feel a little less annoyed. I have tried politely educating people in the past but some people are just too ignorant for it to work.

posted March 27, 2017 (edited)
A MyEndometriosisTeam Member

I don't usually know how to answer this one. I usually just nod and pause. To me, it is profound how so many women apparently have this disease and how it can simultaneously still be treated as a non-issue. Recently, Lena Dunham, who has endometriosis herself, was talking on Ellen about how she manages the disease with yoga. She lifted her leg up next to her head. I felt outraged because I thought, "This is giving people the wrong impression of what it's like to live with endometriosis." But at the same time, I am happy that she is feeling well and hope that I will too. The bigger issue is society's misunderstanding and dismissal of endometriosis as a chronic illness. Yes, it is about learning to give myself permission to be as I am with this disease, whether I'm feeling great or not--to feel worthy of love. That's an important piece. But is also significant that sometimes feeling or looking good would consequently mean people might altogether dismiss my illness and my suffering. That and its repercussions really impact my world and I hope that it can someday change to being a more aware and compassionate place.

posted April 2, 2017
A MyEndometriosisTeam Member

Haha you don't look stupid! Jk

posted March 27, 2017
A MyEndometriosisTeam Member

I'll say no I don't look sick, but even tho I am sick I still looking ten times better than you! 😉

posted March 27, 2017
A MyEndometriosisTeam Member

Don't judge a book by its cover is what I say! And be careful what you judgements you make about people as you never know what you might be faced with! Xxx

posted April 10, 2017

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