Hi Travelandbaby-
Yes, I find socializing and being active to be difficult with this illness. I can relate to you in the feeling of just having enough energy to go to work for the week, and then spend the weekend getting enough energy to go back and do it again. I use to be in the same boat, where just going to the grocery store on Saturday after working all week would be enough to put me in bed for a couple of days! For me, I have had to just push through some of the fatigue to still feel like I have a life. i also found acupuncture helpful for my energy levels. I pick one day a week for fun with others and if not having one of my worst days, I just push myself to get out despite the pain/fatigue. And then I have had to change my idea of fun, and now find setting in the sun in my yard is fun, and doing my yoga with nice music is fun, and talking slow, leisurely walks fun. It use to be hiking and trail running, bike camping, canoeing, going out with friends....but these are not things I can do much anymore. I still try to do them, but much slower and less intense than I did 6 years ago.

Im in same boat, i had a romantic sleepover scheduled wih my boyfriend tonight but yet again looks like i b cancelling on him.

I go for food a lot (sat down, eating, whatever I would be doing naturally at home) but I always try to avoid alcohol unless I want to be paying for it pain wise the next day

I never make plans in advance. If I do it seems I'm always cancelling them. I'm only able to know sometimes on that day whether I will be well enough to make it.
It is so frustrating and I think embarrassing for us, especially when other people don't understand and just label us as flakes.
I have cancelled so many engagements over the years, I don't make plans anymore.
So you are not alone. take care

I never make plans in advance because Winslet's find myself cancelling them. I have to do things spur of the moment. So now I find that no one wants to invite me to anything and I spend most nights in bed very early or dying on the sofa. My husband is supportive and says he's happy as long s he's with me but my social life is pretty much non existent these days. Xx