I was on Lupron for 4 years straight with add-back therapy, with no breaks between. I decided against my doctors orders to stop the injections because I was having terrible side effects and I started doing research on the drug. After 4 years on Lupron, I had excision surgery and completed 6 month of Zoladex injections. After the 6 months, I had another excision surgery to find the endo had spread to my uterer, bladder, and kidney. I am now on an IUD and take a daily birth control pill. This combined therapy is supposed to keep my ovaries suppressed. It didn’t work, I start my period, the first time in 8 years and it’s terrible. Yes, Lupron has terrible side effects. And I’ve been of the drug for 3 years and the side effects have not reversed themselves. Everyone has horror stories of the drug to share, but that was the only time that I could function without being in extreme pain. During that time, I was working full time and I had a life outside of minor flare ups. I was not living in constant pain. Now, I find it difficult to get out of bed some days because I am in so much pain. Pain from the side effects of Lupron yes, the joint pain, the osteoporosis; but more in pain from endo itself. It feels like someone has a knife in me and it moving it around my insides. I have stage 4 endo with frozen pelvis and other health issues that may or may not be all connected. Doctors don’t really know. After a full laparotomy, 4 excision surgeries,numerous procedures, and countless pokes with needles I find myself in the same place before I was diagnosed. Feeing like I’m crazy and in pain. The education and research on endo has a long ways to go. You know your body better than any doctor. I’m at the point in my life to find relief permanent is ideal, but temporary relief would be life changing.

I did not know anyone prescribed @Lupron for that length of time. Sounds very risky. I thought it was limited to two (separate) non-concurrent 6-month treatments. I am on my second course of @Lupron, myself. I only agreed to take it so that my Dr. would perform a @hysterectomy. You are lucky to live near some @excision specialists. https://www.nm.org/doctors/1710995311 There are none where I live. @Excision is the only and best chance you have for complete remission. There is a Facebook Group called "Nancy's Nook Endometriosis Education" that you might consider joining. It is not a support group but is filled with tons of information. They have a list of several skilled specialists in your area. Please consider setting up a consult with one of them. Wishing you the best of luck!