I used to sleep great, but when I start getting endo pain I have a hard time staying asleep. If the tiniest thing wakes me up, that's it, I'm awake. If I take something before bed it wears off before it can help. And I don't always have an opportunity for a nap later in my day. Has anyone found a way to get restful, restorative sleep? Only getting 6 hours of sleep a night almost every night is really wearing me down.

I was curious if anyone else has ever noticed exercise helps symptoms? I was doing CrossFit regularly and I noticed my cramping, spot bleeding, pms symptoms subside. I noticed when I am heavily stressed they come full force. But doing intense exercise did the reverse.

I had a laporscopy about 4 years ago and I felt better for about a year before things got really bad again I was on a waiting list for surgery last year until we found out I was pregnant with my baby girl. After having her I felt great for a few months and now the pain is coming back I'm noticing it more and more. It's not constant like it used to be so I'm wondering if it's worth looking into surgery now or if I should wait till it gets worse and do it then

Has anyone had any relief from a specific diet? I have read that cutting out specific foods might help, sticking to a certain diet, etc. What has helped you all
I feel horrible when I eat things high in sodium because it makes the endo belly worse of course so I know to try and stay away from things like that- but what else
Specifics are welcome because telling me to just cut out all sugar, high protein, low protein, blah blah blah is not helpful to me. Links are also incredibly helpful!
Th… read more

Endo needs to be removed deep and wide by the excision technique. Not every OBGYN knows how. When it's done correctly the Endo has a very small chance of returning. Call one of these Surgeons and take care of yourself. If it's not possible to see one of these surgeons, still call and they can recommend a quality surgeon near you , who can give you good care.

I've been on it for just over two months. It has completely stopped my period. I'm getting my Endo under control in hopes to have a baby. I'm worried that without a period I maybe going backwards 😞

Hi everyone,

I had 2 surgeries to treat endometriosis which both didn't help with the pain at all. In fact, they gave me more symptoms such as longer heavier period and severe constipation. (As I have stage 4 endo that attached to the bowel and I guess it may affect my nerve to pass the bowel)

After reading stories of other sufferers, I found my case is a little bit different that I do not have everyday pain like others but my pain will be before, during and after having period only but a… read more

I had surgery in September for removal of cyst off both ovaries and when they got inside they found a lot of endometriosis they also removed my appendix because it was so diseased. They also placed the mirena to help. After surgery they told me I should feel 100% better. Well I didn’t. They sent me to pelvic floor therapy and I completed 6 sessions, the therapist stopped treatment because I was showing no improvement. My doctor has all but wrote me off and wants me to see a nutritionist because… read more

Has anyone been in so much pain your legs hurt,you get super nauseous and your lower body feels weak and funny (can't explain it better)???