Anyone With Severe Endometrial Calcification

Question

So, to make it short and sweet I started my. About 11 and was diagnosed about 14 or 15. I was told I couldn't have children after several miscarriages in my late teens or early twenties. I had my miracle baby in 2011 when I was 23 but was on bed rest for 42 weeks and bled the entire pregnancy which I was told made the endometriosis turn into the calcified in the meet you out sis. I have had one hell of a time finding doctors or anyone that knows anything about endometrial classification! It's all just a bunch of gibberish to me when I Google or I try to find books, it would be nice to find someone that has been diagnosed first-hand! Unfortunately, I have been unemployed due to a lot of health issues and currently am on a state funded plan which we all know they do not do what they need to do to get help especially for I still have pain that you cannot see. I've had a laparoscopic done they're telling me that I cannot have hysterectomy due to my age which is 33 and having a child and then also that it's pre-existing?! That if I wanted one I would have to pay myself?! At this point, the calcification has moved into my bowels, cervix, lower and upper intestines and I don't know if it's in my upper back or just causing pain in my upper back but it's beyond intense! I got a physical therapy two to three times a week on top of the medication prescribed, yet I'm never fully happy if that makes any sense. I'm 33, I should be running around with my child living a thirty-three-year-old life not a life of a woman that can't go do things because my whole body hurts and my doctor thinks that I just need to take pamprin or birth control! If anyone is going through this or has any information or advice, please please please I pray that you could give me some insight, information, or even just someone to talk to you. Thank you so very much for reading this even if you don't respond.

A MyEndometriosisTeam Member · Accepted Answer

I flew from FL to NYC to see Dr. Seckin as well (just last week)! My surgery is scheduled for Jan 18. After 6 months of being bounced around by different doctors, I saw Dr. Seckin on the Today Show and I booked my ticket to NYC and he was able to diagnose me properly with Endo and Adeno. Looking forward to removing this attrocius disease.

A MyEndometriosisTeam Member · Answer

I just recently went to an excision surgeon Dr. SECKIN he was wonderful answerd all my questiobs and also could answer questions for me. My next stage is to prepare for excision surgery on 24th of January.

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