I Haven’t Been Officially Diagnosed With Endo Yet But I Have Questions.... | MyEndometriosisTeam

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I Haven’t Been Officially Diagnosed With Endo Yet But I Have Questions....
A MyEndometriosisTeam Member asked a question 💭

I’ve gone to my gyno 3x in a few months time. I went because I was so afraid I had ovarian cancer. Everytime I googled my symptoms OC was all that came up. I feel like I might get 1 week out of the month where I feel “normal”. My symptoms include bloating, night sweats, some pelvic pain but not severe, rib pain, extremely bad sciatic pain, hip pain, groin pain, thigh pain and clotting during my period. My gyno says it sounds like Endo. The 3 transvaginal ultrasounds I’ve had show nothing. The… read more

posted January 2, 2019
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A MyEndometriosisTeam Member

Yes i have all symptoms. The depo shot makes my life liveable, without it i would be in horendous pain all the time. Endo does not show
up on any scans, although i can say i went in for another transvag ultra sound just last week and while they were pushing on my ovaries i had excruciating pain in my hip/buttocks/ groin and then my whole leg just went numb and cold. I had bad symptoms for days after that. I also have rib pain daily.

posted January 3, 2019
A MyEndometriosisTeam Member

I am so sorry you are feeling so miserable. Ive had xrays, ct scans, ultrasounds.... and none of my endometriosis or adhesions ever showed up. Only once did a very keen radiologist detect a slight narrowing of my intestine, which later was discovered to be an adhesion, binding my intestines. On paper, including my lab work, I look like the healthiest person around. Before diagnosis, I did wonder if I was just crazy. But endometriosis is one of the "invisible diseases" which can be so frustrating. Yes, I have had all of the symptoms you describe. Night sweats can also be related to imbalance of hormones. Ovarian cysts can throw your hormones out of wack. I have a pulling sensation on my left flank and lower ribcage right now. I would bet a million bucks it is from my large intestine adhered to the pelvic wall. I am getting very good at adhesion detection after 5 surgeries. I wish I had been able to have a laparoscopy sooner, before the disease had progressed. Between the ages of 9 and 26, a lot of adhesions had grown from all the bleeding and inflammation caused by endometriosis. I hope you do get some relief. Im glad you found this forum. There is a wealth of information here, and kindness. Blessings.

posted January 2, 2019
A MyEndometriosisTeam Member

I know you posted this months ago but it is EXACTLY what I’m going through now! I was diagnosed with endometriosis 6 years ago but a lot of these symptoms are new and I’m convinced it’s OC so much so that I asked my doctor for an US.

posted August 10, 2019
A MyEndometriosisTeam Member

Oh wow the same thing happened to me with my ultra sound. I was in so much pain I wanted to say something to the tech but was embarrassed.

posted January 27, 2019
A MyEndometriosisTeam Member

I have terrible night sweats and sometimes rib pain, maybe deal with rib pain up to 3-4 times a week. I have had ultrasounds, CT scans, Hydascans, MRIs, and X-rays done. My doctor said that it could be the Endo spreading since I have had it for so long, 9+ years and its effects my other organs unfortunately. He also said it's hard to really see Endo without going in there and looking at everything like with and endoscope.
I am sorry you are having to go through this and it's really still up in the air as to what it possibly could be. I hope it gets figured out soon so that you can start a treatment that helps!

posted January 2, 2019

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