I would slowly decrease the amount and ask to be put on something else

@A MyEndometriosisTeam Member we all must have a right to complain! Don't feel bad :) just sad part is, no one likes to listen or hear us.... so many times I have heard that I should "suck it up" , "that's the disease, deal with it and so on". And the truth is, that actually no one cares, especially many doctors with such "uncomfortable" patients like us. I lost the trust in my doctor completely after my last visit though I hoped for at least some empathy because she went through the cancer herself.

Mentioned Users

A MyEndom...

Oh wow, I feel bad complaining - your situation sounds horrible. I em emphatic to your situation though, it’s hard when you feel strong armed into a choice. I know the doctors are trying to do what’s best for us, but they aren’t on the medication and don’t understand the implications if they don’t live it. It’s not fair for them to get mad and judge. I can’t even get an appointment to see my doctor right now, and just feel like I want to stop by myself out of frustration. I hope the mirena works out for you. I have a feeling my doctor will suggest that too, but at this stage I want to come off all chemicals and let me body have a break. If we get pregnant in that time, then that is fantastic but I know we will need to do ivf if we really want to make it happen

I have the same dilemma these days. I am taking Visanne for 5 months now. About 2 months ago I have started to experience leg muscle pains to the point that in some days it was a challenge to raise out of bed or go to the shower (went to many doctors for tests, I am perfectly healthy except endo). My blood pressure started going up, so I was prescribed to blood pressure regulating pills, and on bad day, pain killers for my legs. I feel like my depression is coming back, my intimate life is non-existent, my skin is so dry that I color my dark clothes white, overall skin condition is terrible, my nails so brittle they just crack of while sleeping and I keep spotting for months. Oh... and of course, this terrible fatigue....Despite of all these side effects of the pills, my obgyn still thinks that it's the best and only option for me. If I stop, my endo will rapidly grow back. I asked for Mirena instead. She was not very happy about it but gave a prescription for this saying that it will be my own risk and that she would recommend to continue taking pills together with other medication. I just don't know what to do at this point and really lack a support for this question since Mirena is very unpopular in my country.

I guess that would be like taking half a pill a day Instead of 1? I am hoping I can get in to see her soon but it’s a palaver to get in. I don’t want drugs anymore but I fear the alternatives of it coming back with a vengeance. Thank you for responding 😊 it helps