Here's another article; interesting that it's a controversial diagnosis. TBH, I haven't read much about it yet, since I've sort of found treatment strategies for it all my life. Dr. Mosbrucker had said that was about all I could do.

https://www.self.com/story/what-you-need-to-kno...

Did you look on endofound.org or endometriosisaustralia? Those are good sites too.

oh goodness, yes, I have that too. how much time have you got? LOL

My feel have swelled up mostly in hot weather or when I eat salty foods since I was 9. Started my period at age 11. Feet have done that since. I wear compression socks when they are bad, do pelvic floor physical therapy, yoga, go for walks, calendula extract (but check with your doc as it interacts with stuff).

They finally started making cute compression socks, the brand is Sockwell and I find them at specialty pharmacies or Amazon for about the same price.

hope that helps, let me know, please & thanks, if you want more info or have questions

Thanks! I’ve read that one.
My post-op is still a couple weeks away, so I’m just trying to see what’s helped other people before I go so I have at least decent questions to ask. I’ll check out those other resources!

Thanks; I'm glad my info helps. Yes, I think the pelvic floor physical therapy is a good place to start. my physical therapist recently recommended I only get acupuncture for a while. She said in her experience, when endo women hit a plateau in progress with physical therapy, acupuncture is really helpful. I'm only 2 sessions in, but so far I have a lot more energy, which is exciting!

The compression socks definitely help. On days when I don't wear them and should, I definitely have more pain later, especially in my hips. I also saw a colorectal surgeon because of the severe rectal spasms and she diagnosed levator ani syndrome, which is fancy for rectal spasms. She gave me some exercises, but I would see physical therapy first before trying anything.

I'm assuming you read about Denise Alberto in my recommendations tab, but do so if you haven't already because she gave tips for finding a good therapist and allowed me to share them in my review of her here. (https://www.myendometriosisteam.com/users/5d1ab...)

You're right about there not being much info. Here's a little bit of a discussion in an article on Dr. Mosbrucker's site.
https://pacificendometriosis.com/my-philosophy-...

Thanks! As always, you have so much good info to share.
It really helps me not feel as alone in this battle, which as you know is a tough one to overcome.

Did you find the compression socks helped with any related pelvic pain?
I do have on my list for my post-op to talk about getting a referral for pelvic floor physical therapy. Hoping that might help improve things overall.

It seems like there isn't a whole lot of solid info out there on this issue, which for a person who likes to read & understand the issues is not helpful!