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Cycles After Hysterectomy (radical, No Ovaries)
A MyEndometriosisTeam Member asked a question 💭

This may sound like a stupid question. I know @A MyEndometriosisTeam Member talks about being able to tell when cycles would be starting despite having a hysterectomy, but keeping her ovary (ies) due to hormonal fluctuations. Does that just completely and utterly shut down when you have a radical hysterectomy (no ovaries)?

posted October 9, 2019 (edited)
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A MyEndometriosisTeam Member

Orilissa has the same long-term side effects as Lupron, Depo, and other GnRH agonists. I suggest looking them up.

posted November 6, 2019
A MyEndometriosisTeam Member

I had my uterus and cervix and my left ovary removed best thing that ever happened then they gave me orlissa for endometriosis pain and it works great

posted October 20, 2019
A MyEndometriosisTeam Member

Your 🐕 is the sweetest little baby girl! It is SO nice to have emails like this!

posted October 12, 2019
A MyEndometriosisTeam Member

She was spayed back in April. She is four and only had two heat cycles (I swear, we started to wonder if she had doggy girl issues, par for course in this house! 😉). She had her last one a year ago (Oct 2018) and she’s been acting kinda weird and I realized yesterday how similar it was to right before she went into heat. She’s a silly girl.

She is really my daughter’s dog but after her hysterectomy, my husband suggested she sleep w us so we could keep an eye on her and my daughter could rest at night plus we concerned with her and the stairs.

When I had my hysterectomy in August, she suddenly became my best friend. She has always had a thing for my husband (I tease that she is trying to steal him from me) but we have bonded over our hysterectomies, I guess. 😂

posted October 10, 2019
A MyEndometriosisTeam Member

Hmm, yes, I hope to hear from someone who had ovaries out. Yeah, I've gotten different answers from docs on that. Dr. Mosbrucker and I had a long discussion over whether to keep my ovaries or not. She ultimately recommended keeping them. And it's weird, because sometimes I can tell when I would have my period, mostly by my PMS (LOL) but I'm not 100% at it.

My understanding is that our fat tissue still makes estrogen, so that without ovaries you have a huge loss of estrogen, but not completely. And that's why they say it's important for us EndoWomen to stay at a healthy weight (which is so tough for me)

I had a friend with endo who had her uterus and ovaries out at age 23! She said surgical menopause was hell and it's still tough to try and keep weight off and manage her moods. So I don't know what the right answer is. I think the myth of "take the ovaries and the endo stops" is a lie.

posted October 9, 2019

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