So far I have had 3 1 month shots and each month my symptoms are worse. I have bad hot flashes and I am also on progesterone tablets.
I’m so sorry to hear it hasn’t gotten any better and that you’re going through this.
I have to make a decision between Lupron or IUD as the birth control pill is no longer an option for me. What does everyone feel is better for pain relief and elimination of growth?
I have the Mirena IUD as birth control and still use Lupron for endo. So it’s not really a choice between the two. Lupron was hard on my overall system but I got significant pain relief from my… read more
Because of my PCOS and endometriosis, I suffer from chronic pain and anemia which has led to significant weight gain (more than 60 lbs, 20 of it in the last 3 months). Now I’m going for a full hysterectomy in April and beginning hrt shortly afterward. I would appreciate any advice and/personal experiences. Thank you!
It’s said post 2018
Hey ladies! I will be having my left ovary removed soon. I keep becoming septic and in and out of the hospital. My Doctor would like me to start on Orilissa after my surgery. Can I hear your stories about this medication?
I can't count how many times I actually fainted today. I spent most of my day in bed with depression consuming me, but I had to be so careful every time I got up because I know I'd just fall right back onto my bed. I didn't have the strength to blow dry my hair after my shower and even showering made me short of breath and dizzy. I started bleeding lightly today, first day of my strange irregular cycle maybe? Never know if I'm just spotting, point is I'm not bleeding heavily. I've eaten exactly… read more
Pots is probably what you're experiencing or some type of dysautonomia
Hi ladies. I am new here and i guess relatively new to the world of endo. I went to the ER about 2 month's ago for pain that wasnt going away. They found a large cyst on my left ovary after multiple tests. I found an amazing dr and he did excision surgery a month ago. He said i have stage 4 endo. He removed the cyst and the endo he could but unfortunately alot remains. I am starting Lupron on Monday (dr also stated hes putting me on an "add on" medication as well). Any positive experiences on Lu… read more
I am a 51 yr old female experiencing lower abdominal pain, bloating, fullness,more gas than normal, mote weight gain, if i move too fast the sudden sharp pain stops me in my tracks. I have had a… read more
My body does not handle birth control bad side effects. The obgyn i saw today gave me a pamphlete on lupron telling its not at all like birth control and will shut down my ovaries. And there is nothing else they can do other than that, or get pregnant and they can not do partial hystorectomy because i got ovarian cysts before having endo and that i would keep getting ovarian cysts even if they only removed the uterus. Which wad tilted onto the ovary that the cyst ruptured was on and could do no… read more
I will look into that! Thank you for mentioning visanne!
Any one taking orillisa pills?
How have you been feeling??
What is everyone's opinions and experiences on the Lupron shot?
I did. I wouldn't do it again. My cyst has grown.. Pain is just as severe and then you have the awful side effects.
I’ve always been exhausted no matter how much sleep I got... my entire life Ive had issues with fatigue, but ever since I starts Lupron I have been SOOO exhausted that i can barely keep my eyes open some days... does anyone experience this? And is there anything I can do about it? I take multivitamins everyday, and I dont drink caffeine so I dont know what to do
Does it work