Looking for some guidance about dos and donts that can help to make pain less. What should I avoid? What should I eat more of?

Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more

Hi ladies. I hope that you're all coping well with your endo & that you're feeling peaceful (although probably unlikely). I'm wondering, I have a Youtube channel & am wanting to put up a video about what endo is & to share my journey with endo (to promote awareness of this condition, as well as to get us talking & sharing). What I'd like to know is if any of you would happen to have any advice or interesting tips that I could include in the video for those who may be watching? This could… read more

I am 38 and have the worst of the worst symptoms, pain, heavy bleeding, depression ect. I just started the mini pill to help ease theses symptoms. I am missing work and life. Several yrs ago I tried it and bled and cramped for 2 months. I am desperate and trying it again. I have migraine with aura so I can't tolerate reg BC at all.

My gynecologist told me that she is certain I have endometriosis as well as pcos, with all my symptoms fitting them perfectly. But she also informed me that it would require surgery to confirm it so that I can get the treatment needed. I can’t take time out of work or college to do the surgery and life is miserable living it in pain and sleeplessness all the time. It’s not just a matter of missing out on work or school, it’s the money too. I can’t afford to be off more than a day, and I’ve been… read more

Does anyone else have problems with endo & urine leakage? I find myself leaking wee a lot. Currently waiting on next surgery for extensive endo

New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder. Any of you who have had a hysterectomy please tell me how long did it take until you could move around at least for an… read more

Hi, my name is Beth, I’m 25 and I’m on my journey to get diagnosed with endometriosis as my symptoms only seem to worse with age. Unfortunately I have come to a dead end and have decided to go private to get some answers. If anyone from the North East / Northumberland area has any recommendations I would be so grateful. Thank you.

I have 2 endometriomas on my left ovary. I was scheduled to have them removed next week but the hospital cancelled my surgery due to the guidelines for the Coronovirus right now. Since my surgery is postponed I’m taking this time to do a lot of research. I’m learning excision is the best method. I’m wondering how likely they are to return or for more to develop if I’m not on anything after the surgery? My doctor said if I don’t suppress the hormones it will grow back but I thought if they were… read more