Hi all, I trying to find someone who has had small bowel endo , or has the same symptoms as me? I had a bowel resection for endo in my sigmoid colon, but for the past 2 years (have had uterus removed,retained ovaries) I've had cyclical blood in stool, bloody mucus..which over the last few months has progressed to passing small blood clots with stool and actual pieces of bowel lining/mucosa. It's obv very painful still. My bowel consultant has checked large bowel but can't find it. He thinks it⦠read more
I am so sorry.
I have bowel isues too but to embarrassed to say how it is but everyone says I should tell the dr. but too scared.
I think I might have cancer & just waiting .
No one really knows what is wrong with me.
I have a lot to ask you but another time.
I will be praying & please keep in touch.
love, prayers, & hugs
Tigreyes.
So i definitely have bowel endometriosis...I was shown pics from my surgery last year with it on. I was basically lied to and told it was piles, despite it showing up on mri in 2020! Still having colonoscopy and mri to look at extent amd starting decapeptyl asap to try and prevent progression and another resection. Sad to have been let down xx
Ps only had adhesiolysis and ovarian plexy last year so I don't think it's adhesions causing it this time xxx
Thank you lovely xx I'm seeing the endo consultant on Monday so will update, am booked for full colonoscopy and abdominal mri. The issues are only during what would be my period, it's v strange. Been diagnosed with inflammatory arthritis so it could be inflammation, hopefully we will fund out this year and I can catch a bit of break, it's been relentless xxx glad you are on the way up , very promising xxx
Geez girlie, my UK surgical twin LOL, I'm so sorry you are going through this craziness. As you know, I had been doing so well after my last surgery almost exactly 4 years ago until I just recently had to have yet another surgery (robotic) for lots of bowel adhesions. I wasn't sure what was going on (still really don't as I'm not sure it's all over just yet, still following up with GI on the 30th). It all started back in March with what I thought was a UTI, but I was having nausea, diarrhea, bloating, low grade fever, and pain that radiated from my ribcage (and in the back where my kidneys are) all the way to my pelvis along with crippling vaginal pressure. I literally (14 days after surgery) am JUST now starting to feel some better. It's been a long three month journey so I feel for you. I have seen all kinds of Drs from female, kidney, GI and PCP, had numerous testing done as well as countless blood draws and consulted with pelvic floor therapist. Thank goodness for my endo specialist. I am convinced this is long-term inflammation related to Covid, I had it in January. I also have GERD and Crohns too. I was going to ask you, could this possibly be Crohns? Because of the blood in the stool. Usually they tell us to check for dark, tarry looking stool (or coffee ground-appearance) Are you nauseated? Have loose watery stools? Fever? Joint pain? Just throwing some ideas at you. Hope you get answers soon. Good luck and God bless.