I have 2 endometriomas on my left ovary. I was scheduled to have them removed next week but the hospital cancelled my surgery due to the guidelines for the Coronovirus right now. Since my surgery is postponed I’m taking this time to do a lot of research. I’m learning excision is the best method. I’m wondering how likely they are to return or for more to develop if I’m not on anything after the surgery? My doctor said if I don’t suppress the hormones it will grow back but I thought if they were… read more
Consider looking in different states, if you find one that takes insurance it might be more doable even with the cost of travel
what sort of BCP suits you best?
Hello Ladies
I am currently a stage 4 endo sufferer who has had more than her share of surgeries (including partial hysterectomy, appendectomy, ovary removal, etc. all for endo). My current situation is I am not on meds since we have not been able to find one best for my situation. My left ovary has a 3.5 cm endometrioma we are monitoring. Luckily it is growing slowly. The thought is if we can hold on to the ovary then I can limp my way through to menopause in another 5-8 years without using… read more
This is where my thought process is...I am 47 and wondering what can I do to bridge the gap to menopause....I started visanne in September....and I haven't had a period since..which I don't like… read more
I have been experiencing a lot of shoulder blade pain the last few years...I have not injured myself but if flares up like a burning sensation usually around ovulation and period time. I have recently been diagnosed with Endo - after going back and forth to dr with symptoms for about 10 years now - no lap done so they are just assuming I have it and all my symptoms point to that....I started visanne in September and symptoms have subsided somewhat but a lot of side effects came along with… read more
yes, after taking vissane for 4months, I exactly have the same symptoms that you are experiencing. I wonder it may be because of the vissane effects on bone density. I wish I could resolve it somehow
My symptoms are not getting better. Nothing seems to be helping. My symptoms are so severe all of the doctors I have seen want me to have a Hysterectomy. Possibly a full one if my ovaries are damaged. I have been warned that Menopause at my age (26) is rough. I want to know about your experiences or thoughts. Thank you.
I used to think hysterectomy was a cure to Endometriosis. Unfortunately it is not. I have done extensive research and the best Endo treatment available is complete excision surgery. Sometimes we need… read more
Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more
I've been on visanne for 6months. Almost 4months having this spot/slight bleeding. The next day right after finishing 6months taking visanne i got slight period. I dont know if it is normal. My endo… read more
BuckeyeGirl did they ever end finding it? I have gone for approximately 4 scans after the first and still nothing 😔
I was diagnosed with stage 4 pelvic endometriosis
YES! I totally had pain and they didn't give me really any options so I just coped, but I would put pressure on then and ask what your options are.
Im on them now and just want to know what poeple experienced after they stopped the injections. Xx
*these are montly stomach injections for 6 months or 2x over six months. They bring on temporary menopause**
Is that Lupron that makes your body believe that you and perimenopause is that that has so many things done that I have no idea at this point. I’m just going back in time.
Anyone else use Visanne?
I've been on Visanne for 8 months and it made my life so much better. I had spotting for about 2 months, then it all stopped. Had one break through a month ago, but with minimal pain. Endo is on my… read more