I had multiple procedures recently. I am 21 years old and I had an endometrial ablation, tubal, removal of endometriosis, and cyst removal. This procedure was about 2 weeks ago and I'm concerned. I have already had a uterine infection and had to take really strong antibiotics. I'm having a full period now with large clots and excruciating pain. From what I've been reading this looks like the procedure didn't work and it's only going to get worse. Does anyone have experience with the ablation? I… read more
@A MyEndometriosisTeam Member is right. In my experience and other women's stories burning of the endo never works, if anything it only makes it worse. Find a specialists! I wish you the best!
So if endo was found during ab hysterectomy in.pouch of douglas and diathermied, and then in a 2nd op 6 months later, endo cyst was found on ovary and more excised from pouch of douglas and on rectal? wall, can i now say i dont have endo? Or once you have it do you always have it?
If you have endo Inside of the Ovary, it can produce more endo. You are unable to tell if you will get more Cysts because it grows inside the ovary until it is pushed outward. However, if the endo in… read more
I know I have not been on in awhile. I am having a horrible day. The pain started yesterday and is so bad today I had to stay home from work. I have been in bed all day took my prescription pain meds and nothing is helping. I have no insurance to go back to the dr right now. Are there any options out there for me just until I can get insurance when open enrollment begins. I am tired of hurting and it affecting my life
Yes ma’am, when it gets this bad nothing helps. I also started my cycle yesterday which makes my pains so much worse.
Dear All
I am 48, I started my periods when I was 11 and started bleeding from my umbilicous when I was 17. I bleed vaginally as well each period but have apprx 2 periods each month, and have done so ever since for the last 20 years. I am now flooding each week and I'm convinced I also have fibroids. I am currently having to take some annual leave to get me through these grotty days - I have been threatened with the sack in view of the amount of time I have had to take off work (much of it… read more
Thank you for taking the time to write. I am looking into all the advice I have been given. Many thanks.
They have not done the surgery on me but im on a 6 month pill becaiss they said they dont want to just go in and they said the pill will not effect me having a baby in the future. I just want a secomd though on that . Has anyone went through this? If so were you able to have a baby in the fute
Hi everyone
I’m a 19 year old who was diagnosed w stage 2 in my bowel, pouch of Douglas, uterus and cervix! I had an excision late in dec last year and was put on mirena iud. This has helped immensely but I am still in pain every day, and my periods are still awfully heavy! I have been told to take visanne on top of the iud to fix this and to stop getting a period altogether. Has anyone had this experience before? I’m terrified of gaining weight and not sure how I feel about double dosing… read more
Oh goodness. Does she think you have adenomyosis? And of course not all pelvic pain is endo. Did you ever get pelvic floor physical therapy? That also helped me a lot. Not trying to say it should… read more
What were your symptoms and how you were diagnosed MRI or CT scan?
We only had TVS and i have both. The bloating is terrible
No doctor will test me to see what stage I am at. I'm worried that I am not going to find a doctor that will listen to me. Any tips on finding a doctor that will listen to me?
Thank you so much Ill have to see if i can give him a call!
Would the doctor make you get a hysterectomy if you have bleeding for a whole month straight with no stopping? I have been having bleeding that has been non stop and some pain and it sucks. I feel depressed and i feel insecure and frustrated. What do i do?
Heather, that’s great news to hear. I m going through the same thing that Cayla is right now. Progesterone only stopped the bleeding for 3 days then it came back for 25 days now. Doc put me on… read more
My doctor is really pushing me to keep trying to stick to meds (Lupron-depot) over getting surgery... like until I need a hysterectomy after I’ve had kids... wayyyy in the future... but I am in excruciating pain and keep asking about excision surgery and she never answers if she even does it, she just says ‘meds are better than scar tissue’ is it time for a second opinion?
You're welcome. Hope it helps and let me know if I can do anything.