Endometriosis

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Laparscopy recovery

Laparscopy recovery

Its been a week since my surgery, i want to start gettinng back into my workout routine. Where should I start? I know I cant do to much, but i need to get back to it. Is it to early? should i wait longer into my recovery?

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A MyEndometriosisTeam Member said:

First of all, welcome to EndoTeam.

I had to ask my excision surgeon all those things. She told me it depended on exactly what she had done in the… read more

posted 4 days ago
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pain during transvaginal ultrasound

pain during transvaginal ultrasound

I recently was diagnosed with suspected endometriosis due to unbearable pain and digestive issues during my period and sharp stabbing pains especially during ovulation. I went today to get a routine pelvic exam and transvaginal ultrasound to see if there is anything else that could be causing this. The pap smear/pelvic exam went fine, but the ultrasound was terrible. The way my ovaries are positioned, she had to push the device quite hard at weird angles to see them. It felt… read more

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A MyEndometriosisTeam Member said:

Yes! Whenever i have to get an ultrasound it makes me cry. They have to apply to much pressure because my ovary is in such a weird spot and angle. The… read more

posted 4 days ago
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Endometrioma

Endometrioma

I have an endometrioma on my right ovary, I have had it for about a year now and I am waiting to be able to afford surgery hopefully within the next 6 months. Anyway I have started feeling sharp pains more frequently on my left side. I’m really worried because I want to protect my good ovary. I can’t afford to see my usual doctor but I was wondering if anyone knows if once you have an endometrioma on one ovary if I have a high chance of getting one on my other ovary?

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A MyEndometriosisTeam Member said:

I don't have an answer for you, but I do have this. I only have one ovary, on my left side, and most of my pain is on the right side. Which there is… read more

posted 4 days ago
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Pain after surgery

Pain after surgery

I had laparoscopic surgery about a week and a half ago, and I still cannot pee without being in terrible pain. It doesn’t feel like a UTI to me; it’s a pain that starts around my bellybutton and then kind of fans outward from there and lasts a few minutes. But it’s bad enough that I can’t stand or breathe very well. I did call my surgeon, but he wasn’t available and the nurse I talked to told me not to worry about it. But I’m worrying anyway. Have any of you ever experienced anything like… read more

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A MyEndometriosisTeam Member said:

I had pain, but only for 2-3 days after at the most. I would call again if you don't feel like it is improving.

posted 5 days ago
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Endometriosis seems to be the culprit?

Endometriosis seems to be the culprit?

I have lower stomach, lower back , and pelvic pain all the time and it worse when I'm on period, which I suffer severe cramps. I have days where pain isn't as bad but never when lt doesn't exist. Have had recurring infections as well yeast and BV. Have had issues for 7 years now. There is pain with any insertion of speculum into vagina and they say vulvodemia for that? Tried to have sex one fime and couldn't due to pain. I always have pain after bowel movements as well.… read more

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What do you do for birth control while on Orlissa?

What do you do for birth control while on Orlissa?

I have my post-lap exam on Thursday and I think my doctor plans to prescribe me Orlissa. I've heard Orlissa works by regulating hormones, therefore it won't work as well if you are also on hormonal birth control (which I am). I suspect I will be taken off the bc pill and put on Orlissa for ~6 months ---but what do I do for birth control for 6 months?

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A MyEndometriosisTeam Member said:

I think it's actually the opposite. I think Orilissa makes a combination pill not work bc Orilissa cuts down on the estrogen in your body. Like Kate… read more

edited, originally posted 6 days ago
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What do you suggest to try about chronic pelvic pain?

What do you suggest to try about chronic pelvic pain?

It’s like my pelvic pain is starting to become unbearable and no anti-inflammatory drug is helping. I’ve tried ketorolac, Diflunisal, tramadol, orilissa, I’ve now got the iud but I feel like it’s just getting worse. .

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A MyEndometriosisTeam Member said:

Thanks

posted 5 days ago
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How to get pain meds?

How to get pain meds?

So I had larascopic ablation and cyst removal done about two weeks ago. The dr prescribed tramadol for the pain. Unfortunately I left the script for the meds in my friends care who i cant get ahold of. I had a few pills left from a previous prescription but I'm down to 3 pills. Problem is that suddenly my pain has come back full force and now that I'm back at work I need the meds to get through my shift. I heard some people where able to get meds prescribed through pain clinics. How do I… read more

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A MyEndometriosisTeam Member said:

I can usually call my doctor and he'll send over the script electronically but tramadol is not something that you would want to keep taking the side… read more

posted 6 days ago
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Endo and soda/ lemonade?

Endo and soda/ lemonade?

So had a great day..then had a lemonade and now im in excruciating pain, real low terrible stomach pains..this has ALWAYS been the case with drinking soda and I havent had a soda since i was 11, I'm now 28, but I havent had a lemonade in years. Does anybody experience this and or know why it may cause so much pain. Also ive not been on here much bc I'm still waiting for my apt to discuss a possible laparoscopic surgery on August 22nd.

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A MyEndometriosisTeam Member said:

Oh, and I am having technical difficulties, but a friend of mine with interstitial cystitis says she can't have anything acidic. You may have said this… read more

posted 6 days ago
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Taking 1/2 of orilissa pill?

Taking 1/2 of orilissa pill?

I skipped a day of medication and today I tried taking half of the pill. I didn’t need to take a nap today. This medication makes me so exhausted. Has anyone else done this on the lower dose 150?

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A MyEndometriosisTeam Member said:

I did that once when i was on my conception pill then when i did that it made me tired and upset my period cycle. Now i am on HRT patches and pills i… read more

posted 6 days ago
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