Quick Links
Resources
About MyEndometriosisTeam
Powered By
Is it difficult or cumbersome to use? I am considering buying one. Is there any style or brand you would recommend?
Script.com. Can't remember the name but it's about 70$ sometimes on sale for $19.99
Hi everyone,
I had my lap on the 12th June and had widespread but superficial endo and it was lasered off. After this I experienced heavy bleeding for around 2-3 weeks and my GP put me on tranexamic acid to stop the bleeding- which it did. Since then I have had no bleeding and have been on the progesterone only pill, like normal. However over the past month I have been experiencing pelvic endo pain AGAIN and tonight, I have started bleeding again
I have been in touch with my GP who I am… read more
I've had a full hysterectomy and after had to have more endometriosis burned and my bladder moved a half inch and I'm bleeding why? I'm freaking out this is 4 surgeries!!!!
A bunch of endo was removed from one of my uterosacral ligaments, and elsewhere, in my third lap last month.
However, I am still having pain in the bowel/sciatic nerve area. My pelvic floor pt has determined that the pain is not related specifically to my pelvic floor.
Besides hot baths, otc pain relievers, and stoof softeners, does anyone have any advice for dealing with this kind of nerve pain? I have an appointment with a Nook surgeon in June, but that’s a long time from now…
Have you tried something like the Livia? https://mylivia.com/about
It is like a tens unit if you know what that is? You wear these little stickies and it attaches to a little control sqaure. It sends… read more
My pain Dr has successfully treated endo patients with a spinal cord stimulator implant and I am considering trying it this summer. I’d love to hear from anyone about their experience with this!
Have you tried a portable Tens unit first? Like the kind that chiropractors use? My docs wanted to go that route and I started talking to other people who've actually had it done and every single one… read more
Does anyone use heating pads in their workplace? I've been using the stick-on disposable heat patches. I am thinking of getting a heat pad for my office desk chair but can't seem to find anything designed for this purpose.
I hear Sunbeam is another good brand for electrical heating pads.
Has anyone ever had a Spinal Cord Stimulation procedure?
My pain is so bad that the dr. wants me to give it a try but it is very detailed & was wondering fi anyone ever had one or know of someone who has.
Thank you ladies.
Hi Tigreyes,
I recently heard a celebrity say it only takes one action by you to change your life. If you watch talk shows. A man needed a kidney so on a cardboard cut out he took to a Bears football… read more
I am not necessarily asking a question. reading through these posted makes me want to cry because finally someone else understands me. I want to bring it to someone’s attention that there is a little magical device out there. I heard about this device 6 months ago, and after receiving it 2 months ago, my quality of life has improved. Not completely, but I think this information could change someone’s life. https://mylivia.com/
Please click that link and read about this device. Essentially Livia… read more
It’s like a tens unit… sends small electric pulses to your nerve endings in your belly and essentially keeps them too busy to send pain signals to your brain alleviating pain
Does anyone get sharp nerve pain in the clitoris and labia sorry if thats tmi but its really bad today just wondering if its endo related.
Which nerve ? Who did your surgery if you don’t mind sharing
Hey guys,
I have struggled with really bad knee pain for 3 years, and have recently been diagnosed with endo.
Online it says that nearly 50% with endo have leg pain, but has anyone else had knee pain.
I went to a physio and she said she thinks i have patellofemoral knee pain.
Anyone else had a similar experience?
Hey mattie, thanks for replying and that’s really useful to know! But unfortunately it’s a constant issue haha! X