I used to sleep great, but when I start getting endo pain I have a hard time staying asleep. If the tiniest thing wakes me up, that's it, I'm awake. If I take something before bed it wears off before it can help. And I don't always have an opportunity for a nap later in my day. Has anyone found a way to get restful, restorative sleep? Only getting 6 hours of sleep a night almost every night is really wearing me down.
When I get a flareup, I get about four hours asleep, so I usually take an edible and I sleep all night
I was curious if anyone else has ever noticed exercise helps symptoms? I was doing CrossFit regularly and I noticed my cramping, spot bleeding, pms symptoms subside. I noticed when I am heavily stressed they come full force. But doing intense exercise did the reverse.
I read in an article that doing core work is a no no due to pulling in the stomach and risking spreading the adhesions to the other side of the stomach ? It sounds logical doesnt it?
Endo needs to be removed deep and wide by the excision technique. Not every OBGYN knows how. When it's done correctly the Endo has a very small chance of returning. Call one of these Surgeons and take care of yourself. If it's not possible to see one of these surgeons, still call and they can recommend a quality surgeon near you , who can give you good care.
Hiya
Im waiting for a second opinon on having a hysto as prostap and add back aint working if anything its making the pain worse and im now having irreg bleeds :/ im currently on gabapentin it… read more
Has anyone been in so much pain your legs hurt,you get super nauseous and your lower body feels weak and funny (can't explain it better)???
Sometimes I have super bad cramps -not usually enough to make me vomit, but every period I get what I call 'jello legs'. No one seems to know what I'm talking about.
Hi Endo Warriors! This is a photo of me around age 15 when I first started experiencing Endo symptoms. I remember temporarily losing my vision twice due to the pain being so bad. I remember feeling so afraid because I was suffering so much with vomiting on my period too and no one thought anything was wrong with me. When you are told there is nothing wrong with you, you stop asking for help because you feel afraid that maybe you are the one who is mistaken.
Anyways, fast forward 10+ years, and… read more
Wishing you all a wonderful holiday season! I wanted to share that there are only 2 weeks left to register for my virtual endometriosis retreat! I am offering a holiday discount-if you use the code… read more
As a Fellow Endo Warrior and Certified Health & Wellbeing Coach, I understand both the pain that comes from living with Endo and the value of restorative care practices. I created a soul-nourishing 8-week virtual Endometriosis Retreat that will be offered for the first time in January-February 2024. This retreat is centered around the less-addressed areas of wellbeing-the emotional, spiritual and relational aspects of living with Endo.
Living with Endometriosis invites us to start valuing… read more
Wishing you all a wonderful holiday season! I wanted to share that there are only 2 weeks left to register for my virtual endometriosis retreat! I am offering a holiday discount-if you use the code… read more
I am offering a Virtual Endometriosis Retreat January 7th-February 25th and there are only 2 weeks left to register! If you use my holiday discount code “EndoCare” at checkout, the price will go from $495 to $250.
We will gather for 8 weeks (12 hours total) as we explore uplifting and compassionate ways to nurture and express ourselves emotionally, spiritually, and practically with the physical and emotional pain of Endo. Register here with the discount code "EndoCare" for the $250 total… read more
Happy Holidays! I am a Certified Health & Wellbeing Coach and Fellow Endometriosis Warrior who is offering an 8-Week Virtual Endometriosis Retreat beginning on Sunday, January 7th! We will gather every Sunday from 2:00-3:30pm and the recordings will be sent to you in case you miss a day!
We will be exploring different ways we can nurture and express ourselves emotionally, spiritually, and practically with the physical and emotional pain of Endometriosis.
With only 1 week left to register, you… read more
Hi everyone,
I had 2 surgeries to treat endometriosis which both didn't help with the pain at all. In fact, they gave me more symptoms such as longer heavier period and severe constipation. (As I have stage 4 endo that attached to the bowel and I guess it may affect my nerve to pass the bowel)
After reading stories of other sufferers, I found my case is a little bit different that I do not have everyday pain like others but my pain will be before, during and after having period only but a… read more
Very happy to hear a positive hysterectomy story. Unfortunately, mine is not. Sex is the main reason I wanted to proceed with surgery in hopes I could experience sexual intercourse with my husband… read more
@MargaretLillianMcLeod, that is a fallacy uneducated doctors still say and BURNS ME!