Thank you x
I tried 3 IUDs and my body rejected all 3; then tried Norethrindrone and I hated it . My weight changed for the worse and it effected my mood. So I stopped . My doc told me about a newer pill called Slynd . Wondering if anyone else has had experience with this ?
You're most welcome. Incidentally, I'm not sure where you are in your endo journey. Birth control can help, but really they just mask symptoms. It's important that your doctor tell you that it doesn't… read more
Hi I hope someone can help I've been to my GP he did blood test and my estrogen levels are low I'm 47 it's causing a lot of problems down below he has prescribed 10mg of vagifem weekly to help I was a bit concerned because I said to him I taught that estrogen feeds endometriosis he said it was fine because it is a low dose and I'm not taking it by mouth so it's just helping the problem below has anyone tried this before as I'm getting really depressed cause I've tried all of the creams and… read more
Yes I was talking a low estrogen pill orally, it made everything so much worse than it would have been if I was just using my progesterone implant. The implant wasn’t controlling my bleeding so we… read more
I'm 17 years old right now and have been dealing with chronic pain(abdominal and migraines) since I was 12. It started with dually migraines and then went into daily nausea. I went to every odctot possible and they couldnt figure out what it was. I have been in the ER too often to count. It went over too extreme abdominal pain more in the upper area and then in the lower area also. I was checked for gallstones through ultrasound and blood tests. I also had a CAT scan done and two upper and one… read more
Love I am dealing with chronic pain I have both I trying to figure out what can help.
Having a consult tomorrow with an endo surgeon… any tips?
I’ve had a laparoscopy a few weeks ago, in the operation he also found that my bladder and bowels looked in a really bad state (I’ve always had issues with them but I pelvic issues always out weighed them so I never sourced help to be honest) so I’ve been referred to a bowel and bladder specialist.
I was just wondering if anyone had as I don’t know what to expect as in when they do tests and things?
(He said there was no endo on the bladder or bowels this time 🙏🏻 )
I saw an bowel and kidney Dr they were other doctors that did surgery to get endometriosis out.
I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main problem (more like… read more
Sorry to hear about your situation with your partner. My ex-husband is understanding of my condition and he is still supportive even though we didn't have sex. I believe education for men and eveyone… read more
New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder. Any of you who have had a hysterectomy please tell me how long did it take until you could move around at least for an… read more
I had a hysterectomy in June of 2022 and honestly I don’t recall the specifics of when exactly I was able to move around, but I do remember I used my mom’s walker the first month and then as I was… read more
Endmetriosis can grow on organs that would not be removed by hysterectomy such as bladder and bowel and very few surgeons are skilled enough successfully remove every trace of endometriosis so if left… read more
My gynecologist told me that she is certain I have endometriosis as well as pcos, with all my symptoms fitting them perfectly. But she also informed me that it would require surgery to confirm it so that I can get the treatment needed. I can’t take time out of work or college to do the surgery and life is miserable living it in pain and sleeplessness all the time. It’s not just a matter of missing out on work or school, it’s the money too. I can’t afford to be off more than a day, and I’ve been… read more
I can't answer why but I agree that it is ridiculous and unfair. I had the discovery surgery just to get told "yes you have it" and had to have the excision surgery 3 weeks later. Such a waste.