Endometriosis

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Care to share experiences/thoughts about Orilissa?

Care to share experiences/thoughts about Orilissa?

I just began treatment recently. I did some research but it would be nice to hear from someone who is experiencing it first hand.

A MyEndometriosisTeam Member said:

I took Orilissa for about 5 months until I had my hysterectomy this week. I noticed that I had a few days of lesser pain a month but not a significant… read more

posted about 6 hours ago

Any luck with hormonal IUD?

Any luck with hormonal IUD?

I’ve never done well with most forms of hormonal BC, so my doc recommended the Kyleena IUD and I had it placed a little over a month ago. I know it’s too early to expect it to be helping with period and endo pain yet, but I’m curious if anyone who has had a hormonal IUD for a while has seen any improvements from it?

A MyEndometriosisTeam Member said:

Unfortunately no help with pain but definitely helped with bleeding. Wishing you the best

posted about 12 hours ago

Anyone who has had fhe Mirena IUD, how long did it take to get pregnant after?

Anyone who has had fhe Mirena IUD, how long did it take to get pregnant after?

How long did it take yall to get pregnant after IUD removal?

A MyEndometriosisTeam Member said:

A lot if what I saw said 4 to 6 months but idk if I believe that.

posted 1 day ago

Bleeding in a little pain while taking Visanne

Bleeding in a little pain while taking Visanne

Hi, I am 24 and I was diagnosed with endometriosis 1.5 months ago by ultrasound. I have one cyst on both ovaries, one of them 6 cm and other one is 4 cm. My gynecologist suggest me laparoscopical surgery or taking Visanne and I chose taking Visanne. Everything was fine till the last week and I've had no side effects. However, last week I started bleeding. It is small amount and not like menstrual bleeding but it did not stop and gives me pain just like a period. Is… read more

A MyEndometriosisTeam Member said:

You may want to check with some of the ladies on this site! For many, surgery helped clean out what has been damaged to allow for pain relief and… read more

posted about 13 hours ago

Experiences with "adnexal cysts"?

Experiences with "adnexal cysts"?

I just had a CT scan done two days ago, and apparently a "simple appearing left adnexal cyst measuring 2.7 cm" was found. It went on under an "Impressions" part to say "Simple appearing left ovarian cyst". I'm assuming it's safe to say this is probably endo-related, but was wondering if anyone else here has had similar results from a CT scan?

A MyEndometriosisTeam Member said:

Thanks for my hug!

posted about 2 hours ago

Combi pill Vs. Progesterone only pill?

Combi pill Vs. Progesterone only pill?

Hi Endosisters!

So I'm new here - I've just had my diagnostic laparoscopy, prior to that I was on depo provera (injection) for 5 years as it was so bad, however I felt that the side effects were getting worse and gave up after battling with anxiety, hot flushes, low libido, acne etc.

I have tried the Kyleena IUD, it didnt sadly work for me... it actually made things worse at the time!

There isn't much online about the combination pill vs the progesterone pill for endo, I… read more

A MyEndometriosisTeam Member said:

Hey Chloe. Thanks for the kind words and you are most welcome. Hope the podcast helps. I hear you on worry about the clot risk. It is pretty minimal but… read more

posted 4 days ago

Methods to slow bleeding????

Methods to slow bleeding????

Really struggling with amount of blood and clotting. I’ve basically been bleeding for weeks at a time on and off since September, I saw/ told my surgeon/obgyn last week who put me on a different birth control. Pain is horrible but really want to focus on if there are any methods (preferably natural) to slow bleeding. It’s so horrible and so gross. I DREAD going to the bathroom because of the amount of blood. Please if anyone knows anything (Advil, naproxen doesn’t help).

A MyEndometriosisTeam Member said:

No I didn’t, the only thing she mentioned was possibly getting checked for a cyst, what is that?

posted 3 days ago

Does anyone else here use a wheelchair, even just part-time, because of pain/weakness?

Does anyone else here use a wheelchair, even just part-time, because of pain/weakness?

I'm 90% sure I have sciatic endo, and have neuropathy in my foot. Most days are very bad in the mobility department, and I'm probably an obvious fall risk who's just been lucky so far. I've been using a rollator most of the year, but even that doesn't cut it anymore some days.

What type of chair (manual, powered, scooter) do you use? Has it been worth it?

A MyEndometriosisTeam Member said:

I've had a cane for a few years now, but it just isn't enough most of the time anymore. I mostly just use it around the house where it's impractical to… read more

edited, originally posted 6 days ago

Ivf for stage four endo?

Ivf for stage four endo?

Going to he starting ivf soon..is there any advice anyone has from someone who had stage 4 endo and had a successful ivf? What should i expect? Any advice to make the shots easier?

A MyEndometriosisTeam Member said:

Yip I did, 4 wks before IVF treatment started I fell pregnant, same again 12 mths later, that was 14 yrs ago. Dr Deeny, Glasgow said never say never… read more

posted 3 days ago
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