Endometriosis

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9 medium

Sitting Problem

Sitting Problem

I am day 6 post-op . I suffer from having difficulty sitting due to strange feeling at my sacrum .
My appointment with my doctor will be on June19.
I just read in the report that Endo was removed from utero-sacral ligament
Has any one experienced this post-op? Is this normal?
What is the cause of this?

6 medium

Does anyone suffer from excessive sweating?

Does anyone suffer from excessive sweating?

I'm 29 years old and am about to have my fourth surgery for Endo in a span of two years. After my left ovary was removed in September, I began to sweat doing everything! Now I always have a fan on me inside the house, only wear tank tops, and blast the AC in the car when my husband says he's freezing. I understand that this is a lack of hormone production but just wanted to see if anyone had suggestions to help decrease the sweating? My surgery is on Tuesday and I am… read more

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A MyEndometriosisTeam Member said:

I also sweat heavily. My GYN sent me to a dermatologist. All of the treatments broke me out. Now the only thing left on the table is botox injections in… read more

posted 1 day ago
1 medium

What kind of stuff tends to bring on cramps for you?

What kind of stuff tends to bring on cramps for you?

Any weird things that y’all notice make you cramp? Any foods or other known triggers you’re not sure happens to anyone else?

For example, if I’m sitting down almost every time I go to stand up I get mild (sometimes moderate) cramps. Just enough to know they’re there and to hurt. Also I notice a lot of times immediately after waking up i get mild cramping. Also those instances happen more frequently around my period but happen month long for the most part.

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A MyEndometriosisTeam Member said:

From my experience I would guess it’s All due to endo

posted 1 day ago
1 medium

Has anyone had any luck using CBD to help their pain?

Has anyone had any luck using CBD to help their pain?

I’m starting full spectrum CBD oil daily to hopefully help with pain. Has anyone had any luck with using CBD?

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A MyEndometriosisTeam Member said:

I have had great luck with CBD controlling the pain. I have found during my period a combination of edible CBD and tincture work best. Tincture for fast… read more

posted 2 days ago
2 medium

Has anyone tried Zoladex?

Has anyone tried Zoladex?

I was instructed by my insurance to try this Zoladex implant before they will try me on Orlissa. I feel like I cycle more often and the pain is more intense...

0 medium

Has anyone taken gabapentin & what side effects did you have

Has anyone taken gabapentin & what side effects did you have

I'm on a new pill called Gabapentin 100 mg for nerve pain. I am always scared of new pills bc of all my stomach issues & constipation.
Any feedback would be appreciated Thanks

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A MyEndometriosisTeam Member said:

It depends how many a day you take & what the dosage is. What dose did you take?. I am on the lowest 100 mg & it is not helping & will have… read more

posted about 6 hours ago
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Does anyone know of a good gyno who specializes in endo within the Seattle area?

Does anyone know of a good gyno who specializes in endo within the Seattle area?

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A MyEndometriosisTeam Member said:

There's a closed group on Facebook called Nancy's Nook Endometriosis Education. It is very different from this support group because it is more strictly… read more

posted 2 days ago
0 medium

Rectal bleeding

Rectal bleeding

What is the rectal bleeding caused by endometriosis look like?
Is it obvious?
I don't have bleeding but some time after going to the bathroom I notice blood little spots on the toilet paper.
And I don't know if it is rectal bleeding or I just hurt myself because of constipation
And if it is rectal bleeding does it mean that I have endometriosis tissues inside my colon?
The doctor said that if the endometriosis is inside the colon then we can't remove it in the laparoscopy

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A MyEndometriosisTeam Member said:

I don’t know the answer but if I had to guess I’d say from straining. I learned to breath deep & when I let breath out I take it out as far as I can… read more

posted 1 day ago
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