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Endometriosis

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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Can You Have Inactive Endo?

Can You Have Inactive Endo?

I recently had surgery for pelvic organ prolapse. The surgeon said there was a lot of endometriosis. I have had several excision surgeries in the past, including hysterectomy and ovary removal. I sent the pictures to my specialist and he said it looked like old, inactive endo. There is just so much! And I’ve been having issues for almost a year now again.

A MyEndometriosisTeam Member said:

Back 2014, i had my last and 4th surgery to remove my endometriosis and they gad cut, bit of my bowls, liver, kidneys to get in where 5he endo was sitting and they removed my ovaries and given me Hysread more

posted about 14 hours ago

I Have Chronic Endometriosis. What Stage Am I ? Stage1 Stage2 Stage 3 Or Stage 4?

I Have Chronic Endometriosis. What Stage Am I ? Stage1 Stage2 Stage 3 Or Stage 4?

I had a laparoscopy surgery done 2 years ago. My diagnosis is Chronic Endometriosis. I didn't know about stages the disease has until a friend of mine asked me do you know what stage I have.
Today pains getting worser back again.
I take Alleve Excedrins at times Tylenol Pepto for now nauseous bad headaches, real sick I get before getting my period.
What happens if I decide not to have a hysterectomy? Is it good or bad?

A MyEndometriosisTeam Member said:

You need to go back to the doctor that diagnosed you. Never be afraid to ask questions or to tell them about all your concerns and all possible symptoms. Don't worry about feeling stupid or… read more

posted about 23 hours ago

Does Anyone Else Experience Body Aches?

Does Anyone Else Experience Body Aches?

My legs, my arm feel sore
Like ive been workinf out for hours

A MyEndometriosisTeam Member said:

I got tested for it ans my reaults came back negative for it, doctor keeps telling me just to take tylonel. Thanks

posted 2 days ago

Ovarian Abscess Related To Endometrioma?

Ovarian Abscess Related To Endometrioma?

Hello all! This is my first post here, it’s super long and I appreciate the patience of anyone willing to read it! I’d also really appreciate any form of advice and guidance, and also wanted to see if anyone else here have had similar experiences.

I started my 1st period at 10 (I know lol), and have always had very, very heavy periods. I had all-day-long super painful lower abdominal pain + bleeding around 6 days past the end of my period in July (my period started on the 25th and should have… read more

A MyEndometriosisTeam Member said:

I'm sorry you were so sick. Doctor's love to say things to endo patients like "that's really rare so you don't have that". Just because it's currently viewed as rare does not mean you don't have it or… read more

edited, originally posted 5 days ago

Advise On Umbilical Endometriosis

Advise On Umbilical Endometriosis

Has anyone got any good ways to deal with pain, ive been told i have umbilical endo and they’ve put me on the mini pill, i take naproxen and codeine for the pain but usually doenst help if the pain is severe. The pain is usually at its worse when im on my period and my belly button constantly bleeds when im on.

Are Others With Endo Dealing With Extreme Anxiety? I've Had It In The Past, But This Year Has Been The Worst.

Are Others With Endo Dealing With Extreme Anxiety? I've Had It In The Past, But This Year Has Been The Worst.

In the past I've tried various meds and never could tell what, if anything helped. This year alone I tried Zoloft (only made it a week before I freaked myself out and quit), counseling, exercise, journaling, and a bunch of herbal supplements, including CBD and medical marijuana. I try to meditate but struggle. I've taken a few different forms of progesterone as well to help with my endo. I'm just feeling so confused, I feel like I'm missing something or I tried too much. I've been stuck at home… read more

A MyEndometriosisTeam Member said:

@A MyEndometriosisTeam Member
Yes this year has been worse for me, I did counseling for 10 months and didn't feel like I was getting any better. Grounding is something I try, but I get so caught up… read more

posted 4 days ago

Long Term Use Of Visanne And The Side Effects.

Long Term Use Of Visanne And The Side Effects.

I've been on Visanne successfully for 3 years now. It shrank the 2 endometriomas I had in my ovaries. However, in the last few months I've been having moments where I feel really off/sick even that may last for a week. I'm currently not feeling well for like a week and a half now. My symptoms are dry mouth, dehydration, tiredness, shortness of breath at times, pain at side of head in temple area, bubbling feeling in chest area, nervousness, feverish feeling, disturbed sleep, chills, cold hands… read more

A MyEndometriosisTeam Member said:

Also need some help i experience exctle as you just that i dont understand that language

posted 7 days ago

Laparoscopy

Laparoscopy

Hi Everyone! 🤗
I’m new to the site, nice to meet everyone! I really enjoy reading the content on this site.

I just had my first laparoscopy on the 4th. They found stage 2/3 endometriosis & a cyst that they removed. Question, my doctor said the lesions were not that deep to “excise” so he cauterized the lesions. Being that I had stage 2, beginning of stage 3 with some scar tissue do you feel this was the right approach to the procedure? I’ve read so many negative comments about burning, that… read more

A MyEndometriosisTeam Member said:

I had a pretty much a ablation done two yrs ago. That when the burn the whole inside but my pain just came back 4 months ago. Went back to the dr’s there doin a hysterectomy. I got talk to them on the… read more

posted 7 days ago

What Should I Expect After Receiving My First Three Month Dose Of Lupron Based On Your Experiences?

What Should I Expect After Receiving My First Three Month Dose Of Lupron Based On Your Experiences?

I just got my first Lupron shot yesterday and I want to know what to look out for. I also suffer from anxiety, so its hard to tell what’s a side effect and what is being caused by anxiety.

Has Anyone Else Had An Ovarian Suspension Post Op? Please Can You Share Your Experience

Has Anyone Else Had An Ovarian Suspension Post Op? Please Can You Share Your Experience

I was hoping so find more information on ovarian suspensions but I haven’t been able to find a lot, other then a few journal articles. I’m not sure if it’s common and people don’t mention it or it’s rarely done? To cut a long story short, I had a radical excision via lap in 2019 (3 months after my diagnostic surgery) and it was really extensive, so my surgeon actually performed an ovarian suspension. It was literally like two little buttons at the bottom of my stomach, attached to string, that… read more

A MyEndometriosisTeam Member said:

Aw thank you for the hugs (hug back) and replying @A MyEndometriosisTeam Member (sorry, I’m new to this and not sure how to reply properly just yet). Honestly, it’s so crazy! I had been reading a lot… read more

posted 17 days ago
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