Endometriosis

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9 medium

Pre-op assessment questions

I have my appointment tomorrow for pre-op assessment before my diagnostic laparoscopy next week. I want to make sure I am asking the right questions. Would you add any to this list?

1. Will I need bowel preparation before the surgery?
2. Can I take painkillers before the surgery?
3. When will I have a follow up appointment?
4. How long should I take off work?
5. Will they remove my IUD while I am under? (awful beast)

Thank you all <3 x

posted about 2 hours ago by A MyEndometriosisTeam User

I would ask if they will be excising the endo or using ablation. You don’t want to have surgery performed by a doctor that uses ablation.

posted 39 minutes ago
4 medium

Surgery Soon

I am 40 years old and at 30 had total hysterectomy (removal of uterus and cervix) due to endometrial hyperplasia without atypia. The past 6 months I have been having pains in my lower left pelvic region around my left ovary area and at times will feel it in my lower back and tail bone area as well. My first bought of pain was diagnosed by my OB/GYN PA as ruptured ovarian cyst, but it was two weeks later I had the exact same pain. I went back and we spoke about birth control. I was not sure at the… read more

posted about 7 hours ago by A MyEndometriosisTeam User

Perfectly normal.I had to do more surgery than I would have ever wanted.And I am sure I some in my future.But every one was worth it.And if the worst… read more

posted about 4 hours ago
5 medium

Merina and Cysts?

Has anyone else had cysts since having the merina? I haven’t had any before but since having the merina have had to have one removed that was grapefruit sized- I’ve read on another page about the 2 being linked.....thoughts?

posted about 9 hours ago by A MyEndometriosisTeam User

I think that is a side effect.

posted about 9 hours ago
7 medium

Success stories from having ovary removed

Hi ladies.
Since 2013, I've had 5 laparoscopies for my endo - 4 of which were to remove an endometrioma (chocolate cyst) from my left ovary. My last operation was in April this year to remove a large endometrioma from the left ovary, and judging by the pain I am in again, the darn thing is back. My gynae suggested removing the left ovary as this is where all the trouble seems to be. My only fear is that we remove the left and the issues then start on the right. I'm 29… read more

edited, originally posted about 13 hours ago by A MyEndometriosisTeam User

I don't know about that.But mine tends to favor the left ovary.So hopefully since yours favors one you will be ok.But I would think left one is not… read more

posted about 12 hours ago
0 medium

Has anyone ever considered filing for disability for endometriosis in Texas?

I am 21 currently, will be 22 on Friday, and because of my endometriosis I have never been able to even consider working with the random fatigue and pain it causes me. On top of that I, embarrassingly, constantly have to make way too many, often lengthy, trips to the restroom because of the impact my endometriosis has on my bladder. I cannot stay on my feet for very long most days and would have to take too many trips to the restroom for… read more

posted about 21 hours ago by A MyEndometriosisTeam User

The key to disability is medical records and treatment.

posted about 20 hours ago
7 medium

Vissane

Anyone had any success taking vissane . Seem to be really difficult to buy over here

posted about 23 hours ago by A MyEndometriosisTeam User

If you aren’t taking visanne at the exact same minute each day it will lose its effectiveness. I was taking it within a 30 minute window and ended up… read more

posted about 10 hours ago
8 medium

Doctors minimizing pain

Anyone of my endo sisters ever wanted to pull out your hair because your OB/GYN minimized your pain, and they were female as well.....Feeeling really down and depressed, I just want someone to realize that Endo is painful, and sometimes hormonal therapy does not work.........

posted 1 day ago by A MyEndometriosisTeam User

I agree With Sammy Jo!!! Some female Dr's can be very unkind.But most people don't relate to most things unless it affects them.

posted about 21 hours ago
5 medium

Estrogen level on bloodwork

So, I just had my estradiol levels checked and it was a 70 which my doctor said was good. I have NOT felt like I was low on estrogen anyways. I have only used the estrogen patch for the past 16 mths since my hysterectomy. No progesterone at all. 5 mths ago I got a UTI. Does anyone get UTI'S from their endo??? I've only had one other UTI in my life over 20 yrs ago. But I have no reproductive organs anymore and my doctor thinks it's a possibility that endo came back.

posted 3 days ago by A MyEndometriosisTeam User

I never had UTI but u shuld go to endo dr who mite suggest help u most ordinary GP drs don't know much about Endo some don't know how deal with it so… read more

posted 2 days ago
7 medium

Does anybody have incessant upper back pain in between shoulder blades to the point that you can't sleep?

My acupuncturist explained to me that inflammation and problems with digestive could be the cause of this back pain. I have done everything from x-ray to MRI; they are normal. My management to the pain is massage; acupuncture yoga and castor oil pad. it never goes away? Perhaps someone has a more effective way of managing that pain?

posted 3 days ago by A MyEndometriosisTeam User

Hi, @A MyEndometriosisTeam User I had had my third surgery about 2 years ago. I had that too even after hysterectomy but I had pelvic physiotherapy;… read more

posted 3 days ago
7 medium

Are most people's post-ops more than a month after surgery?

I was told by my surgeon's medical assistant that most endometriosis excision post-ops are in 6-8 weeks. This seems like an extremely long time to me. What have other women's experiences been?

posted 4 days ago by A MyEndometriosisTeam User
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