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Endometriosis

Questions + Answers

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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Is It Normal To Have Pain First Time Since Hysterectomy?

Is It Normal To Have Pain First Time Since Hysterectomy?

Had surgery first wk in june dr gave me the clear go ahead almost 3wks ago to sexually explore with hubby. Well we tried yesterday lots of KY and i was disappointed immensely could only have him in only amount of tip had that good rush for split sec then feeling of empty because sex was HIGHLY disappointing and i couldn't finish him via my sex. It was very off putting, upsetting really, and quite honestly i dont wana copulate now. Not to mention i now have pain. So far no bleeding or anything… read more

Should I Get A Second Opinion?

Should I Get A Second Opinion?

I feel like my doctor is just dicking me along. Im scheduled to get an IUD at the end of this month. But anytime anything is inserted (pelvic exams, trans vag ultrasounds ect..) im in horrible pain for 2 to 3 days and they wont do anything for my pain. To the point of where i was vomiting because my doctor told me to take 1000 mg of ibuprofen every 6 - 8 hrs. I feel defeated. Any advice?

A MyEndometriosisTeam Member said:

Thank you so much! I did start looking for endo specialist's in my area, found a couple. But ill definitely take a look on Nancy's nook, i appreciate it

posted 2 days ago

Do Yall Ever Get Monthly Migraines?

Do Yall Ever Get Monthly Migraines?

I get a migraine monthly & Im not sure what the trigger is. But i swear nothing works to get rid of them when they come. Have any of yall ever gotten your hormone levels checked? Or had issues like this😩

A MyEndometriosisTeam Member said:

Yes. I've had hormonal levels checked. I get them all the time. There are times I have them where I dont get the throbbing headache but parts and or half my body go numb cant feel anything i can get… read more

posted 3 days ago

How To Stop A Prolonged Period

How To Stop A Prolonged Period

Hi I was recently prescribed Visanne by my Dr. The pain almost immediately disappeared, but I started my period a month into taking it and now it's been 10 days straight on my period which is showing no signs of stopping. Any ideas on how to make it stop as it's creating havoc in my day to day life

A MyEndometriosisTeam Member said:

Glad you pain is under control. Medications only help with the symptoms. The Endo is still growing. There is no cure for it but excision is the gold standard. Endo makes its own estrogen.

posted 6 days ago

Anyone On Here Have Umbilical Endometriosis?

Anyone On Here Have Umbilical Endometriosis?

I have umbilical endometriosis it started with bleeding out of my belly button which in a wierd way im thankful for or i wouldnt have diag as my weight was used as a reason not to take bloating and pain seriously 😬 wondered if anyone else has had this symptom and if youve managed to beat endo belly without surgery 🤔

A MyEndometriosisTeam Member said:

Hi oh I will look into lymphatic massage definitely need help with bloating x

posted 9 days ago

Pregnancy. Postpartum Birth Control. Endo???

Pregnancy. Postpartum Birth Control. Endo???

I am 32 weeks and 5 days pregnant
I know after giving birth, doctor's usually put women on birth control. I have stage 4 Endometriosis so I'm unsure as to what birth control I should be looking into
My doctors are totally disregarding my Endo and suggesting birth control post partum to enusre I don't get pregnant again without wanting to however to me, Endo is my biggest concern.
What are you alls thoughts on Lupron?
I remember being told at age 35 have a hysterectomy and then go on Lupron.… read more

A MyEndometriosisTeam Member said:

Thank you, Jordan. I plan on breastfeeding as well so going with a non hormonal option is the best idea. I was also leaning towards the copper iud. I am also in my 34th week.. Due date 9/16/2022. How… read more

posted 1 day ago

Should I Be Concerned?

Should I Be Concerned?

I have a DIE nodule on my bowel which is due for removal sometime this year on the waiting list for surgery
I have been getting blood in my stools for a few months now I've dismissed it as the bowel endometriosis causing the bleeding so I haven't seen my GP about it but I'm not feeling at peace of mind and wondering should I go get it investigated I've read endometriosis is a rare cause of bleeding in the stool plus what my sonographer said at my bowel endometriosis scan a few months ago has… read more

Loss Of Multiples And Diagnosed W Endo

Loss Of Multiples And Diagnosed W Endo

Feb 2022 I found out I was pregnant. Had early miscarriage of twins. A few days later I found out I had an ectopic pregnancy and when they were in there for surgery it showed two in my left tube. Four babies in all.all natural, I hyperovulate. It also showed A-LOT of Endo. The doc took a bunch out while I was under and now I have tried again to get pregnant and it has failed.

Anyone else just completely terrified this will be a common thing ?! I’m to the point of deciding if I should give up… read more

A MyEndometriosisTeam Member said:

I have read that if you have excision surgery your chances of having a successful pregnancy increases even if you have to do IVF. I believe there is a file on Nancy's Nook about pregnancy and Endo… read more

posted 14 days ago

Rare Endometriosis?

Rare Endometriosis?

Anyone has scar endometriosis from c sections?
If so did you get the lap surgery and is it even worth getting?

A MyEndometriosisTeam Member said:

Oh sorry, to answer your other questions
Yes, my bladder and uterus were fused, and my bowel/small intestine were attached to my abdominal wall. I can feel it happening in the same spots again, some… read more

posted 7 days ago

How Do You Deal With The Comments From People Who Don't Understand Your Diagnosis?

How Do You Deal With The Comments From People Who Don't Understand Your Diagnosis?

I live in a third world country where there is a lot of meddling from everyone in everyones lives, sometimes they mean well, other times they just want to know peoples business just because. When I tell people about my endo I usually get a lot of "oh, so and so had the same thing and she drank this and got cured" "if you just pray everything will be ok" "you're just too focused on the negatives". How do you deal with these comments on a daily basis? I know I'm not supposed to let them get to me… read more

A MyEndometriosisTeam Member said:

I might steal the Google it part, it sounds like a good way to end the conversation

posted 8 days ago
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