Endometriosis

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Has anyone had Botox injections in pelvic floor muscles?

My doctor wants me to get Botox injections in my pelvic floor to help my muscles relax bc I keep having muscle spasms. Has anyone had good results with Botox? He said there is a chance the muscles will paralyze to where I won’t feel when I need to use the bathroom so I’ll havs accidents but it’s rare. That terrifies me!

posted about 7 hours ago by A MyEndometriosisTeam User

Does anyone have an endo diet recipe website they like to use? I've been looking but haven't found one yet!

posted 2 days ago by A MyEndometriosisTeam User
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I get a lot of recipes from Prescribe Nutrition. Not specifically endo diet, but it’s clean eating and they promote dairy free, gluten free, fresh… read more

posted about 2 hours ago

Can endo cause your periods to basically stop? Worried and need advice please!

Hey everyone! I would really appreciate advice as I’ve looked online and haven’t found anyone asking this and it’s worrying me...
Quick background ... Periods aged 11 to 18 very heavy and painful. I tried various types of birth control from age 18 to 23, helped at the beginning then periods came back heavy after a while. Beginning of this year I stopped everything to give my body a break surprisingly I had regular, not overly heavy… read more

tags: Period irregularity Late period. missed periods

posted 3 days ago by A MyEndometriosisTeam User

New, confused & unsure

Hi.. i had my laproscopy, d&c, hysteroscopy just over 2 wks ago. My report says hyperplastic endometrium on anterior wall, dense adhesions removed. Also my filshie clips were removed from behind my left ovary!! Still waiting on results so unsure what this all means ( no news good news im hoping).. my symptoms of severe pain and constant sick feeling have eased but still early days i suppose. I have never experienced heavy bleeding or spotting (luckily) so am confused as to if i have… read more

posted 3 days ago by A MyEndometriosisTeam User

Has anyone used Zoloft before?

Just wanted to get an idea about what the effects of Zoloft are if anyone has used it before

tags: #painrelief #medicine #pain#treatments Zoloft Has anyone used Zoloft?

posted 3 days ago by A MyEndometriosisTeam User
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@A MyEndometriosisTeam User that’s awesome! Just like you said, medicines affect everyone differently, but Zoloft I think has more benefits than… read more

posted about 9 hours ago

Cbd oil

Anyone using cbd oil for endo pain please share your experience

I have a friend with a rare disease who experiences a lot of pain and no pain medication helped her. Then she started on cbd oils and she could walk again, and her pain is not only subdued but getting better. She believes that it will eventually cure her pain completely. Through her I found out about the cbd oil and I am down to try once I can afford it

posted 3 days ago by A MyEndometriosisTeam User
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I just started and am taking it daily first thing in the morning when my pain is at a high level and I haven't eaten yet to take my nsaids. I actually… read more

posted 2 days ago

Is anyone suffering from bad depression from hormone treatment?

I have been on hormones to stop periods and attempt to get rid of most of the pain from Endometriosis and PCOS. Although it has helped the pain substantially I have never felt more depressed in my life. When I say I cry everyday, I mean everyday. I go from a major high to an all time low, then get angry! It's really starting to affect my relationship. Am thinking about coming off them and back on pain management but am terrified that I will then… read more

tags: Depression and endometriosis hormones.

posted 3 days ago by A MyEndometriosisTeam User
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That's really difficult when it's hormones controlling your mood! I took clomid (fertility drug) for a couple years and completely lost myself. When I… read more

posted 2 days ago

Anyone had large blood clots bigger than a golf ball?

Hi. Sorry if this is TMI but I am freaking out! I have undiagnosed endometriosis and diagnosed PCOS. I always have clots when I bleed, but I had a sharp pain shooting through my vagina and I could barely sit still. It took my breath away. I ran to the bathroom and I passed a huge clot. It was dark and red and looked like a piece of my insides. I have anxiety so I immediately went into a panic attack because it scared me so bad. Now I am bleeding so severe that… read more

posted 3 days ago by A MyEndometriosisTeam User

How do you handle the holidays?

I’m having a hard time dealing with the holidays. I have hope since I’m having surgery to January for my adno and endo but right now everyday I’m in misery... either pain or gi issues. Both of our families live hours away so it’s stresing me out about traveling and feeling awful! It’s so hard because I usually love the holidays and feel this year so down. Do I try to suck it up or just tell our families we are staying home? It’s so hard I don’t want to disappoint anyone :(

tags: Dreading the Holidays

posted 4 days ago by A MyEndometriosisTeam User

Endometrioma Recurrence

Has anyone had an endometrioma occur again very shortly after surgery? I am so paranoid, I had surgery 3 months ago and now I have the right sided ovary pain and bloating which led me to find out about my endometrioma. I don't want another one I, so don't want to have to get surgery again and so soon . I hate being paranoid like this. I pray this thing doesn't come back so fast.

tags: Endometrioma

posted 4 days ago by A MyEndometriosisTeam User

Mine has always come back after my surgeries.
As far as bloating what is an everyday normal for me I usually have my surgeries every 5 years but now… read more

posted 3 days ago
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