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Endometriosis

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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Increase Of Pain?

Increase Of Pain?

I usually have bad pains 2x a month or so. But now I've been having pains for almost 2 weeks straight. Has anyone else dealt with this and what it could mean?

A MyEndometriosisTeam Member said:

Any ladies out there who have used herbs, and alternative tx's? How successful where you>

posted about 18 hours ago

Anybody Have Extreme Fluctuating Blood Pressure With High Heart Rate Week Before Period With Position Changes?

Anybody Have Extreme Fluctuating Blood Pressure With High Heart Rate Week Before Period With Position Changes?

That recently started about two weeks ago. I passed out once in a chair. It wasn't very long and and haven't passed out since.

A MyEndometriosisTeam Member said:

You should call your dr. Something is wrong you need to find out.

posted 1 day ago

Does Anyone Get Seriously Pale On Peeiod?

Does Anyone Get Seriously Pale On Peeiod?

A MyEndometriosisTeam Member said:

I always, ALWAYS got sick and pale before my periods.

posted about 6 hours ago

Has Anyone Experienced A “lightning” Pain With Endometriosis?

Has Anyone Experienced A “lightning” Pain With Endometriosis?

i haven’t made a post on here in awhile, but here i am. idk who else to ask this to /:

i was asleep in bed the other night when i woke up due to this horrible pain in my right side (where my endo usually hurts). it was like lightning anytime i moved even an inch so i pretty much couldn’t move due to the severity of the pain. i got pretty scared because it still wasn’t gone after like 10 minutes and i couldn’t move but then it went away. is this an endometriosis thing?? my pain has been coming… read more

A MyEndometriosisTeam Member said:

Yeah doc thought I had appendicitis because at that point I had not got my dignosis but found it it was endometriosis it’s so bad it hurt so much as well you just want to stay in bed and cry because… read more

posted about 10 hours ago

Endometriosis Question

Endometriosis Question

Hi there,

I had 3 early miscarriages and I have tested positive for bcl6 and cd138 recently. I took antibiotics for cd138 and is cleared now, But my bcl6 is still positive and h-score is 3.8. Does that mean I have endometriosis? I never had endometriosis symptoms. I am not sure what to do

Birth Control Cause Gastric Distress?

Birth Control Cause Gastric Distress?

Does anyone else’s body reject hormonal birth control? I feel like I've done my best to explain to my doctor, for reasons i do not understand, every time I'm on birth control, it results in me having gastric distress (extreme nausea, frequemt Constipation, vomiting especially in the morning, spasms in my intestines). I finally stopped using my Nuvaring, which was an attempt to be easier on my stomach, but it's clear it does the same kind of damage. Last time i went off birth control, it took… read more

A MyEndometriosisTeam Member said:

I have been on multiple birth controls from the pills to the mirena. When I am on any type of birth control my periods will not stop until I'm off the birth control. Doctors have tried low estrogen… read more

posted 4 days ago

TTC Years After Surgery And After Vasectomy Reversal

TTC Years After Surgery And After Vasectomy Reversal

I had my second endo surgery in 2016. My husband had a vasectomy many years ago and we’re discussing having it reversed to TTC. Has anyone been through something similar and had a successful pregnancy? I was pregnant once but it was ectopic (2015). I’m 34 and my husband is nearly 38. He has two kiddos from his previous marriage (they’re 14 and 16 now). I have not been on any hormones since 2017 because I hate the way they make me feel and wanted to give my body a chance to balance out through a… read more

I Am Suffering From Major Hot Flashes Plus My Body Temperature Is Always So Hot. What Does Everyone Use For Hot Flashes?

I Am Suffering From Major Hot Flashes Plus My Body Temperature Is Always So Hot. What Does Everyone Use For Hot Flashes?

A MyEndometriosisTeam Member said:

Macca root and black cohosh supplement. I take one macca root pill in the morning on empty stomach and one after dinner. I take one black cohosh pill in the day. I had my ovaries removed and after… read more

edited, originally posted 6 days ago

How Long Am I Supposed To Bleed After Surgery?

How Long Am I Supposed To Bleed After Surgery?

Last time i had surgery i dont remember bleeding during week 3. But it has also been a while since my last ablation.

A MyEndometriosisTeam Member said:

Im on continuous bc so no period.

posted 7 days ago

My Doctor Suggested Taking Orilissa. Has Anyone Taken This Med? How Did You Feel On It? Did It Help With Your Symptoms?

My Doctor Suggested Taking Orilissa. Has Anyone Taken This Med? How Did You Feel On It? Did It Help With Your Symptoms?

A MyEndometriosisTeam Member said:

My gyno recently mentioned putting me on this after my fiancé & I try for our 1st & only baby in the next few months. I’m very skeptical of it, or most meds out there. We all have so many symptoms… read more

posted 7 days ago
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