Care to share experiences/thoughts about Orilissa?

I just began treatment recently. I did some research but it would be nice to hear from someone who is experiencing it first hand.

Any luck with hormonal IUD?

I’ve never done well with most forms of hormonal BC, so my doc recommended the Kyleena IUD and I had it placed a little over a month ago. I know it’s too early to expect it to be helping with period and endo pain yet, but I’m curious if anyone who has had a hormonal IUD for a while has seen any improvements from it?

Anyone who has had fhe Mirena IUD, how long did it take to get pregnant after?

How long did it take yall to get pregnant after IUD removal?

Does anyone have long stretches of no pain/little pain and then suddenly suffer the worst pain imaginable for equality long stretches?

Bleeding in a little pain while taking Visanne

Hi, I am 24 and I was diagnosed with endometriosis 1.5 months ago by ultrasound. I have one cyst on both ovaries, one of them 6 cm and other one is 4 cm. My gynecologist suggest me laparoscopical surgery or taking Visanne and I chose taking Visanne. Everything was fine till the last week and I've had no side effects. However, last week I started bleeding. It is small amount and not like menstrual bleeding but it did not stop and gives me pain just like a period. Is… read more

Experiences with "adnexal cysts"?

I just had a CT scan done two days ago, and apparently a "simple appearing left adnexal cyst measuring 2.7 cm" was found. It went on under an "Impressions" part to say "Simple appearing left ovarian cyst". I'm assuming it's safe to say this is probably endo-related, but was wondering if anyone else here has had similar results from a CT scan?

Combi pill Vs. Progesterone only pill?

Hi Endosisters!

So I'm new here - I've just had my diagnostic laparoscopy, prior to that I was on depo provera (injection) for 5 years as it was so bad, however I felt that the side effects were getting worse and gave up after battling with anxiety, hot flushes, low libido, acne etc.

I have tried the Kyleena IUD, it didnt sadly work for me... it actually made things worse at the time!

There isn't much online about the combination pill vs the progesterone pill for endo, I… read more

Methods to slow bleeding????

Really struggling with amount of blood and clotting. I’ve basically been bleeding for weeks at a time on and off since September, I saw/ told my surgeon/obgyn last week who put me on a different birth control. Pain is horrible but really want to focus on if there are any methods (preferably natural) to slow bleeding. It’s so horrible and so gross. I DREAD going to the bathroom because of the amount of blood. Please if anyone knows anything (Advil, naproxen doesn’t help).

Does anyone else here use a wheelchair, even just part-time, because of pain/weakness?

I'm 90% sure I have sciatic endo, and have neuropathy in my foot. Most days are very bad in the mobility department, and I'm probably an obvious fall risk who's just been lucky so far. I've been using a rollator most of the year, but even that doesn't cut it anymore some days.

What type of chair (manual, powered, scooter) do you use? Has it been worth it?

Ivf for stage four endo?

Going to he starting ivf soon..is there any advice anyone has from someone who had stage 4 endo and had a successful ivf? What should i expect? Any advice to make the shots easier?