Endometriosis

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What questions did you ask your surgeon before Laparoscopy?

What questions did you ask your surgeon before Laparoscopy?

I do have a fairly lengthy list, but want to make sure I'm asking everything I might possibly need or want to know at my pre-op.

Thanks in advance!

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A MyEndometriosisTeam Member said:

1. What he or she plans to do in the procedure, especially if they plan on taking organs. If you want to keep your ovaries/uterus make sure that’s not… read more

posted 1 day ago
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Orilissa

Orilissa

Hello everyone, my obgyn is suggesting I try taking Orilissa to help with endometriosis pain, and that it will shrink the lesions. Is this true? I’ve read it helps with pain but I’ve never heard anything about it possible shrinking or curing endo at all. She wants to avoid a 10th surgery but I’ve tried every other BC method available and nothing has helped except ablation, my last surgery was in 2015. Should I try this pill out or push for surgery?

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A MyEndometriosisTeam Member said:

Have you had excision surgery?

posted 2 days ago
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Treatment Options

Treatment Options

Hi,
I am going in for my post-op appointment in a few days, and I know my doctor wants to change my treatment. I have endo all over my uterus, colon, and rectum, and they were not able to remove any during my last surgery. I’ve been on several oral contraceptives, but all have made me feel even worse than I do with nothing. The last one made me gain 30 pounds and bleed nonstop the entire time I was taking it. I have read that IUDs can be an option, but I don’t have any experience with that. I… read more

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A MyEndometriosisTeam Member said:

Only thing my mirena has helped is periods are not so heavy - so can see it would be helpful if heavy periods were your issue.. hasn't helped my pain...… read more

posted 2 days ago
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Laparscopy recovery

Laparscopy recovery

Its been a week since my surgery, i want to start gettinng back into my workout routine. Where should I start? I know I cant do to much, but i need to get back to it. Is it to early? should i wait longer into my recovery?

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A MyEndometriosisTeam Member said:

First of all, welcome to EndoTeam.

I had to ask my excision surgeon all those things. She told me it depended on exactly what she had done in the… read more

posted 4 days ago
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Laparoscopy diagnosis

Laparoscopy diagnosis

Hi,

I recently had my laparoscopy, after speaking to the doctor he said I had it on my left ovary, pelvic wall he also mentioned it was on my bladder and abdominal wall. Now I’ve read up about the abdominal wall which apparently is rear and you get it if you have a c section which I haven’t had I don’t have any children. Just wondering if anyone else has also been told this? He also mentioned going back in 4 months not too sure if that would be for more surgery I was still a bit out of it… read more

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A MyEndometriosisTeam Member said:

That’s such a tough decision to make ... could you of had children after the doctor cleaned it out if you tried?

posted 4 days ago
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Endometriosis seems to be the culprit?

Endometriosis seems to be the culprit?

I have lower stomach, lower back , and pelvic pain all the time and it worse when I'm on period, which I suffer severe cramps. I have days where pain isn't as bad but never when lt doesn't exist. Have had recurring infections as well yeast and BV. Have had issues for 7 years now. There is pain with any insertion of speculum into vagina and they say vulvodemia for that? Tried to have sex one fime and couldn't due to pain. I always have pain after bowel movements as well.… read more

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A MyEndometriosisTeam Member said:

Ive been hvaing issues and feeling unwell for 7 years and have been constantly going to doctors all that time. No one was able to come up with an… read more

posted 1 day ago
8 medium

Endometriosis seems to be the culprit?

Endometriosis seems to be the culprit?

I have lower stomach, lower back , and pelvic pain all the time and it worse when I'm on period, which I suffer severe cramps. I have days where pain isn't as bad but never when lt doesn't exist. Have had recurring infections as well yeast and BV. Have had issues for 7 years now. There is pain with any insertion of speculum into vagina and they say vulvodemia for that? Tried to have sex one fime and couldn't due to pain. I always have pain after bowel movements as well.… read more

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Has someone experienced pain near lungs?

Has someone experienced pain near lungs?

So I've been experiencing pain in my right side whenever I have my period. The pain is like a stab where my right lung ends and then it stays there and it radiates.

Someone with a similar situation/pain?

Thanks!

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A MyEndometriosisTeam Member said:

Thanks! I'll definiteley check with my DR what is going on. It's really frustrating.

posted 4 days ago
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How frequently do you have pain?

How frequently do you have pain?

I know typically endometriosis is described as a period problem but I have pain almost 24/7. Any amount of exercise or activity causes pain for me even just standing or sitting too long ends with me curled up in a ball. Does anyone else have pain this much and do you guys struggle with walking as well?

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A MyEndometriosisTeam Member said:

Jordan tews I’ve been on hormones since June. Usually I get pain a week before my period an during then it
Stops. Well this time. I got extremely bad… read more

posted 3 days ago
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What do you do for birth control while on Orlissa?

What do you do for birth control while on Orlissa?

I have my post-lap exam on Thursday and I think my doctor plans to prescribe me Orlissa. I've heard Orlissa works by regulating hormones, therefore it won't work as well if you are also on hormonal birth control (which I am). I suspect I will be taken off the bc pill and put on Orlissa for ~6 months ---but what do I do for birth control for 6 months?

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A MyEndometriosisTeam Member said:

I think it's actually the opposite. I think Orilissa makes a combination pill not work bc Orilissa cuts down on the estrogen in your body. Like Kate… read more

edited, originally posted 6 days ago
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