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Endometriosis

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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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I Keep Hearing (pain During Sex)

I Keep Hearing (pain During Sex)

So the pain during sex never ends no matter what age, or treatment one is taking? Am 36 years now believe it or not am still a vargin,the thought of a relationship scares the sexual part. Next question being pregnant and having endo, what challenges can one expect during the pregnancy and after pain ways? Some people believe that after being pregnant or given birth your endo because better (theories from community members) is it true? I have many fears first time sex fear, pregnancy fears

A MyEndometriosisTeam Member said:

Stubbornone, Thank you for that 😃now I don't feel like a weirdo,

posted about 22 hours ago

Orgasmic Painful Dreams After Hysterectomy Anyone Else Have This Problem???

Orgasmic Painful Dreams After Hysterectomy Anyone Else Have This Problem???

Two wks post-hysterectomy I woke up from a painful yet pleasurable orgasmic dream...my sex drive has been high since anyone else have this happen?

A MyEndometriosisTeam Member said:

Thank you! It does help.

posted 1 day ago

Visanne Side Effects

Visanne Side Effects

I was diagnosed with endo a month ago my gynae put me on visanne which I have now been on for 2 weeks. The side effects are however so severe that I cannot or do not want to continue. What experiences have others had with Visanne? How long does one experience such feelings of impending doom, anxiety levels through the roof, constant nausea and sleep problems. I honestly just need feedback to help decide whether to stay on or just quit now as it's destroying my day to day quality of life 😩

A MyEndometriosisTeam Member said:

I left visanne a week ago as after three months the symptoms got worse and side affects did not improve. I am now praying for my period to come back 🥹

posted 6 days ago

Has Anyone Used Natural Or Homeopathic Options That Have Helped Your Endometriosis?

Has Anyone Used Natural Or Homeopathic Options That Have Helped Your Endometriosis?

As it is an inflammatory disease, a lot can affect the inflammation, such as hormone levels. I was wondering if anyone has had dietary changes or other natural and homeopathic methods that have made a difference to them?

A MyEndometriosisTeam Member said:

I had significant improvements in my symptoms with various remedies from my naturopath, and did a lot of work on my gut. I found the low FODMAP diet helped, and then i transitioned to the diet… read more

posted 5 days ago

Which Treatment Is Best: Visanne Or IUD (Mirena)?

Which Treatment Is Best: Visanne Or IUD (Mirena)?

Hi all. I have recently been diagnosed with endometriosis which was surprising given my age but it makes sense as it was masked by birth control (Diane 35) for so long. I am booked in for a Laparoscopic left ovarian cystectomy, diathermy of endometrosis, hysteroscopy and polypectomy on Wednesday.

I am really nervous about the suggested treatment plan for post surgery. My options are the contraceptive pill, IUD (Mirena) or Visanne (dienogest). We have ruled out the pill as I mentally cannot… read more

A MyEndometriosisTeam Member said:

Good luck and hope things go well.

posted 8 days ago

TENS Machine

TENS Machine

Has any one used a tens machine for pain? If so did it work? and if it did how well did it work for you?

Natural Support For Endo

Natural Support For Endo

Has anyone had luck with the use of Vitex and other herbal support and diet changes for endo?

A MyEndometriosisTeam Member said:

I havent tried Vitex but a lot of girls on my fertility app are on that and feel it helps improve their cycles/regulate their hormones. A naturopath would be helpful - ask for a comprehensive stool… read more

posted 5 days ago

Visanne With Mirena IUD

Visanne With Mirena IUD

Hi everyone ! I recently had my first laparoscopy to diagnose stage 2 endo (with excision and appendix removal). I’m hoping my pain will be much better, now that they removed my affected appendix ( most pain was on lower right side). I’ve had the mirena IUD in for about a year now and my periods have basically completely stopped. My gyne still says I have to go on something like visanne to stop it from Growing back. Just wondering if anyone has experience having both mirena and visanne at the… read more

A MyEndometriosisTeam Member said:

Hi in 2020 I had a Mirena inserted, but a few months later start getting pain again same symptoms of endo, a month ago my gyne put me on visanne, so now am on both just finished my first month… read more

posted 1 day ago
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