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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Fun ? and A. You Know You Have Endo When...

A MyEndometriosisTeam Member asked a question 💭
Chicago, IL

I started this on a facebook support group once. You KNOW you have Endometriosis WHEN..... (go ahead and have fun here. List those signs where you know fun/serious that you have it)

- you can't wear white pants because your period bleeds through the actual jeans

- Your pill container has more pain meds than other medications you take if any

-you have an In Case of Emergency app on your smart phone listing your surgery

-you've quit jobs to avoid being fired

-you laugh at doctors who ask your… read more

May 21, 2015
 · 
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Answer Summary

Members bonded over the shared realities of living with endometriosis, contributing humorous and poignant signs that capture the daily... Read more

Members bonded over the shared realities of living with endometriosis, contributing humorous and poignant signs that capture the daily struggles, from bleeding through clothing and keeping emergency supplies stashed everywhere to developing intimate knowledge of female anatomy and building deep relationships with medical teams. Several members shared practical coping strategies, including keeping multiple heating pads in different locations, stockpiling pads in bulk, maintaining emergency clothing in cars, using specialized heat patches, and packing layers for travel to accommodate unpredictable symptoms. A recurring theme was finding solidarity and dark humor in the condition's harsh realities, whether joking about rating other pain as insignificant compared to endo, bonding over bathroom victories, or judging romantic partners based on how they handle endo emergencies.

A MyEndometriosisTeam Member

You've been to the ER too many times, so you bring a bag of stuff with you...ipad, iPhone, headphones. That stuff. Maybe I should create an ER playlist. Only half joking.

July 14, 2015
A MyEndometriosisTeam Member

-you know your gynecologist on a first name bases and have considered adding them to your Christmas card list.
-you've been on almost every birth control in the world trying to get your hormones leveled out
-you know the ultrasound lady too because they always want to check for a cyst despite knowing your medical history

May 25, 2015
A MyEndometriosisTeam Member

You wish Endo and ovarian cysts on a friend's soon to be ex husband who is one of the biggest jerks on the planet.

July 14, 2015
A MyEndometriosisTeam Member

You have your own vocabulary to describe words. In the ER: "I feel cysty" to describe the feeling of ovarian cysts.

July 14, 2015
A MyEndometriosisTeam Member

"No, I'm not masturbating. I'm applying lotion to my scar tissue and plucking out hairs from there." How is it possible that hairs there are THAT itchy?!?!

June 11, 2015

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