Can Endometriosis Still Be A Problem After A Total Hysterectomy? | MyEndometriosisTeam

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Can Endometriosis Still Be A Problem After A Total Hysterectomy?
A MyEndometriosisTeam Member asked a question 💭

I wasn't ever officially treated for endometriosis because they didn't find it til they were doing the total hysterectomy. I am wondering if it is possible to still have problems with it even though everything was removed. I know the doctor said she didn't want me on hormones long term because it would make what she might have missed come back but I haven't been using hormones and I'm starting to have a lot of the pains and other symptoms again. Is it possible to still endometriosis after that… read more

posted August 6, 2015 (edited)
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A MyEndometriosisTeam Member

Absolutely.... It's NEVER totally gone.... Could I suggest you just TRY the hormones? They could help with the pain....

posted August 7, 2015
A MyEndometriosisTeam Member

I am on a drug called Visanne, it is progesterone only, as estrogen makes the endo grow. I asked my specialist about hysterectomy as a cure, he said it wouldn't work. As much as I don't want to be on this drug, it keeps it from growing.

posted August 8, 2015
A MyEndometriosisTeam Member

Yes!!! I did not get diagnosed with endo until a year after my total hysterectomy! Imagine how pissed off I am, that I thought I did the radical thing and took care of any possible gyno problems to only get more! So frustrating...

posted August 7, 2015
A MyEndometriosisTeam Member

Wow. I'm looking into going to a different doctor. I havent had it seen about since 09.

posted August 7, 2015
A MyEndometriosisTeam Member

I am so sorry but There is Absolutely NO cure for endometriosis

posted August 6, 2015

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