New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder.… read more
I used to think hysterectomy was a cure to Endometriosis. Unfortunately it is not. I have done extensive research and the best Endo treatment available is complete @excision surgery. Sometimes we need more than one @excision surgery over time. The more experienced the specialist is with deep @excision surgical techniques the less surgeries will be needed and can go many years with relief. There is no known cure for Endometreosis. I am hopeful more specialists will go back to school and learn @excision techniques, and doctors will learn how much more effective they are than any other surgery for Endometreosis. I am also hopeful a cure may be found. 💛🙏
I had my hysterectomy almost a month ago and am still having a hard time being up for long periods of time. I thought it would be much faster healing time as I have had surgery 4 times for endo removal and was up and moving pretty quickly after those. Good luck with your surgery and take it easy! !
I am in exactly the same position. I really empathise love. I’ve recently had a colonoscopy to check if my endo is inside my bowel- thank Christ it isn’t. I’d really like to know if the pain & discomfort (time off work etc) of hysterectomy outweighs the pain & discomfort I’m going through now? At times I feel like a broken record because EVERYONE keeps telling me to “just have a hysterectomy” to fix my endo and I keep telling them a hysterectomy is NOT a cure for endo. A hysterectomy might fix my adenomyosis but my endo might flare up again and knowing my messed up insides, it will! My ovary will have to be removed as well, as it’s stuck to my uterus (my other ovary has already been removed). Surgical menopause isn’t much fun from what I’ve heard & I don’t think HRT (hormones) will be an option because oestrogen feeds endometriosis. My gynae says menopause will be my best friend. WTF? Do I just get a hysterectomy & make my family deal with my murderous impulses? Or do I keep taking pain killers by the boat load? Advice would be very much appreciated. Thank you. Ps I’m 42 & I’ve got 3 kids so I’m not exactly a spring chicken or particularly attached to my ‘uterus’.