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I Am Getting A Hysterectomy. What Will It Be Like?
A MyEndometriosisTeam Member asked a question πŸ’­

My symptoms are not getting better. Nothing seems to be helping. My symptoms are so severe all of the doctors I have seen want me to have a Hysterectomy. Possibly a full one if my ovaries are damaged. I have been warned that Menopause at my age (26) is rough. I want to know about your experiences or thoughts. Thank you.

posted November 4, 2015 (edited)
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A MyEndometriosisTeam Member

Please please please do your research. Find another doctor. A hysterectomy is not a cure. Why have a surgery that may not help and will leave you with the long term issues that come with menopause, like a higher risk for fracturing bones?

posted November 5, 2015
A MyEndometriosisTeam Member

I went to dr. Ken Sinervo at the Center for endometriosis care. There are other tho such as Dr. Koh.

posted November 6, 2015
A MyEndometriosisTeam Member

Please join Nancy's Nook on Facebook and look for an endo specialist!

posted November 6, 2015
A MyEndometriosisTeam Member

I used to think hysterectomy was a cure to Endometriosis. Unfortunately it is not. I have done extensive research and the best Endo treatment available is complete excision surgery. Sometimes we need more than one excision surgery over time. The more experienced the specialist is with deep excision surgical techniques the less surgeries will be needed and can go many years with relief. There is no known cure for Endometreosis. I am hopeful more specialists will go back to school and learn excision techniques, and doctors will learn how much more effective they are than any other surgery for Endometreosis. I am also hopeful a cure may be found. πŸ’›πŸ™

posted April 24, 2018
A MyEndometriosisTeam Member

I had a total hysterectomy at 26 but kept my ovaries. If you only remove one you won't go into full-blown menopause.

I knew it wasn't a cure. I like to consider myself relatively Endo-educated. I had to talk my doctor into it because he knew it was my best and only option left, and part of me has known I would need one for many many years.

I will tell you, however, that my biggest fear came true and the pain returned just as severe and frequent only a couple months later. That is a possibility.

When the issue of children came up, I always said That having the next 10 years of my life to truly life is more important than hypothetical Future.

I'm not trying to sway you in One Direction or the other but I just want you to have the facts of my personal experience to consider in making your decision. Despite everything in the pain that I still have I do not regret my decision to have my uterus removed because I know it would only get worse.

Final piece of advice if you choose to have it. Make sure your doctor uses the latest technology. Shoot for robotic.

posted March 22, 2016

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