It's very difficult to find someone to help with this. My GP actually was the one who suggested the possibility after doing every test under the sun and coming up with no answers for my pain. She sent me back to my gyno who said it was possible, but not likely and didn't want to do anything. I started researching on my own and found all of my symptoms lined up. I found Dr. Sinervo and the Center for Endometriosis Care in Atlanta on the Internet. I sent in my medical records and one of the surgeons called me back and went over them with me and we made a surgical plan and I'm having surgery there in August. So start by researching and looking for specialists and go from there.

hey how does this get diagnosed?! i suspect my endo has spread to other parts of my body but don't even know how to go about finding out.

No I only had trouble breathing upon exertion but I only had adhesions on the diaphragm no actual endo.

No sorry hun. Hope it eases xxx