I am so done with periods and the whole mess of it all. Seriously. Last few years my pills are not taking care of the symptoms like they used too. I'm back to bad PMS and heavy then light periods. At 41 I am so done with pills, patches, rings, and I'm not wanting an IUD. Sad thing is I may have to come off my pills if my BP keeps rising. And on top of that I found out I have endometriosis in my belly button from a laparoscopy I had years ago for an ectopic. WTH? I was told since I was sixteen to… read more

Has anyone experienced weight gain as a symptom of endo?

Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more

Im on them now and just want to know what poeple experienced after they stopped the injections. Xx

*these are montly stomach injections for 6 months or 2x over six months. They bring on temporary menopause**

New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder. Any of you who have had a hysterectomy please tell me how long did it take until you could move around at least for an… read more

I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main problem (more like… read more

My gynecologist told me that she is certain I have endometriosis as well as pcos, with all my symptoms fitting them perfectly. But she also informed me that it would require surgery to confirm it so that I can get the treatment needed. I can’t take time out of work or college to do the surgery and life is miserable living it in pain and sleeplessness all the time. It’s not just a matter of missing out on work or school, it’s the money too. I can’t afford to be off more than a day, and I’ve been… read more

I've been so down and out. I've tried to keep positive about things, but it seems I find it harder and harder every day. My number 1 dream has always been to have a family. I'm engaged and my fiancé has a daughter from a previous relationship. When I see them together it makes my heart melt and she's always asking when she's going to have a baby sister. I can't help but think I may never be able to conceive.. there's some days I can't even look at baby pictures because I get so jealous and… read more

Hello. Anyone menopausal and still having pain? My doctor is convinced that at 51 my endo pain will decline soon and took me off my Norethindrone daily maintenance and Mirena IUD. Crashed and had severe cramps for 3 days. Still having pain in my right side. Hoping the doctor is right, but after 30 years of dealing with pain (post a confirming laparascopy surgery in my 20s), I still feel dismissed and unheard. Thank you.

Hi everyone,

I had 2 surgeries to treat endometriosis which both didn't help with the pain at all. In fact, they gave me more symptoms such as longer heavier period and severe constipation. (As I have stage 4 endo that attached to the bowel and I guess it may affect my nerve to pass the bowel)

After reading stories of other sufferers, I found my case is a little bit different that I do not have everyday pain like others but my pain will be before, during and after having period only but a… read more