6 steps to being your own endo advocate and endometriosis | MyEndometriosisTeam

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Top 10 Search Results for "6 steps to being your own endo advocate"

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Has Anyone Been Able To Get Pregnant Naturally After Excision Surgery ? Would Love To Hear Your Stories!
A MyEndometriosisTeam Member asked a question 💭
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A MyEndometriosisTeam Member

Hi! My friend got pregnant naturally after excision of STAGE IV. I know others as well.

I didn't becauze I was too old when I had excision.

Does Anyone Have Endometriosis And Hashimoto's?
A MyEndometriosisTeam Member asked a question 💭

If so, do you think 1 condition can flare up the other and ideas of causes and/or best ways to manage flare-ups and symptoms?

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A MyEndometriosisTeam Member

I have both. And yes I do believe the flare ups overlap/combine.

Butt And Lower Pain During Sex
A MyEndometriosisTeam Member asked a question 💭

I just had sex for the third time ever but for the second and third time, I felt a sharp pain shoot from my butt and lower back. I didn’t feel the pain in my lower abdomen though. The pain was worse off when doing the doggy style. Is this normal during the first times you have sex or I actually have endometriosis.

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A MyEndometriosisTeam Member

I have had a laparoscopy and I feel the same way. Doggy Style is a hell no because it hurts so badly. The only way I can do it without pain is on my back and I have to take it slow at first no matter… read more

Is It Normal To Get Hot Flashes With Endo? I Have Had A Laporoscopy But No Other Surgeries. I Am Also On Danazol.
A MyEndometriosisTeam Member asked a question 💭
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A MyEndometriosisTeam Member

For me i get hot flashes off and on from my endometriosis.

What Are My Options: I Have Had A Laparoscopy, Am Taking Orilissa, And Completely Changed My Diet.
A MyEndometriosisTeam Member asked a question 💭

I am still in great pain after my laparoscopy not even 6 months ago. I have cut dairy and gluten as well as alcohol. The doctor says its either surgery again or upping my orillissa for the 6th month dose. Has anyone had the same experience? Are there options or is this just life?

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A MyEndometriosisTeam Member

I am 63 and had endo since l was 14. So keep that in mind. Orissa was not an option before my hysterectomy. I take it now l take midol too. Middle works really well and they have a pill that relieves… read more

Is It Okay To Push For My Doctor To See Me Earlier Than Our Scheduled Follow Up?
A MyEndometriosisTeam Member asked a question 💭

Though my diagnosis is fairly new, the symptoms have been rapidly getting worse to the point where I can barely do my everyday tasks and spend most days in bed. I really want to call my doctor and make an appointment but I'm not sure if I can continue to push for stuff this early in my diagnosis. I'm completely new to dealing with a chronic illness and have no idea what I'm doing. Any advice would be appreciated.

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A MyEndometriosisTeam Member

Yes! Absolutely! When you do get to your doc appt, make sure you really tell them how bad it is cause so many of them just ASSUME that since you're new to the diagnosis, it "can't be that bad"… read more

Has Anyone Been On The Depo Provera Long Term And Did It Have Any Negative Effects On Your Body After Coming Off It? I.e Couldnt Get Pregnan
A MyEndometriosisTeam Member asked a question 💭

I’ve been on the Depo for at least 6 years and have been getting pressured to come off it due to the effects it can have long term like bone density and trouble getting pregnant, however it is the only form of contraception that helps my endo and completely stops all periods and endo side effects.

What Is Better Lupron Or IUD
A MyEndometriosisTeam Member asked a question 💭

I have to make a decision between Lupron or IUD as the birth control pill is no longer an option for me. What does everyone feel is better for pain relief and elimination of growth?

A MyEndometriosisTeam Member

I have the Mirena IUD as birth control and still use Lupron for endo. So it’s not really a choice between the two. Lupron was hard on my overall system but I got significant pain relief from my… read more

Depo Shot Not Working Anymore?
A MyEndometriosisTeam Member asked a question 💭

I’ve been on the depo shot for two and a half years, and had a laparoscopy 6 months after starting. They told me they were able to remove about 75% of the endo based on where it was located, so they kept me on the depo thinking it would prevent more tissue growth. Within the past couple of months, I’ve started having really intense periods every 2 or 3 months rather than spotting, and they’re heavier and more painful than before I started any form of birth control. Could this be a sign that the… read more

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A MyEndometriosisTeam Member

Yes. Let's do!

How Long Until I Will Be Able To Move Around For A Whole Day After My Hysterectomy? How Bad Is The Pain? What Was Hormone Replacement Like?
A MyEndometriosisTeam Member asked a question 💭

New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder. Any of you who have had a hysterectomy please tell me how long did it take until you could move around at least for an… read more

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A MyEndometriosisTeam Member

I had a hysterectomy in June of 2022 and honestly I don’t recall the specifics of when exactly I was able to move around, but I do remember I used my mom’s walker the first month and then as I was… read more