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A MyEndometriosisTeam Member asked a question 💭
Melbourne, AU

Hey everyone! I just wanted to know if anyone has experienced bladder urgency related to endometriosis? I'm only 21 and am being woken up at ridiculous hours feeling the need to pee, peeing and then still feeling the urgency! I feel like I have the bladder of an old woman! Any advice would be appreciated! X

August 2, 2016
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Answer Summary

Members overwhelmingly validated the experience of bladder urgency and frequency with endometriosis, with many describing needing to urinate... Read more

Members overwhelmingly validated the experience of bladder urgency and frequency with endometriosis, with many describing needing to urinate every 30-40 minutes despite producing little output, waking multiple times nightly, and experiencing pain when the bladder is full. Several members shared that bladder symptoms often improve after laparoscopic surgery, and some found relief through cranberry juice, Ural for acid balance, or discovered their issues stemmed from interstitial cystitis or adhesions on the bladder's exterior, which a cystoscopy cannot detect. A recurring theme was the frustration of not being taken seriously by medical professionals and the importance of self-advocacy, keeping detailed fluid intake records, and trusting your own body even when symptoms cannot be officially confirmed.

A MyEndometriosisTeam Member

I'm still trying to figure out how to get any health care profession to take me seriously, but yes I've had bladder problems. Urgency, pain/swelling when bladder is full and painful urination, peeing every hour, waking up twice a night, even when I ate too much my bladder hurt. I had a cystoscopy which yielded no results. Adhesion on the exterior of the bladder cannot be diagnosed with a cystoscopy. The urologist diagnosed me with institial cystitis, and told me to stop with the coffee and acidic foods. Well that barely made a difference, and I was convinced I had an endo adhesion on the outside of my bladder. Unfortunately there isn't much you can do about that, I was told, then my urologist offered me a plethora of treatments/therapies for institial cystitis, which I was convinced I didn't have. Plus I've spent enough money and time on useless prescriptions. Fast forward a year, I'm in labour with my second child. I am 8cm dilated and labouring hard, but baby wouldn't budge. I had an emergency c-section, but they had trouble getting her out of my incision, my bladder was high and attached to my abdominal wall. My incision size was doubled and my baby was finally freed from me. Here's the good news, my bladder problems have since disappeared, my bladder adhesion was broken! So glad I didn't waste money on interstitial cystitis medications and therapies. Here's the annoying part, my csection was not performed by my doctor, and I only saw the doctor that performed the csection for about one minute, so there is no doctor that can confirm I had an adhesion on he exterior of my bladder. I know I did though. Unfortunately when you have endo, there will be things you will know and feel that will never be substantiated or confirmed by a medical professional. Just stay strong, be your best advocate!

January 5, 2018
A MyEndometriosisTeam Member

Yes! All day long. My work place think I run off to get out of doing work. It's usually every 30 minutes I'll feel the urgency to pee! I try to hold on but can't for any longer than 30 - 40 minutes.

August 7, 2016
A MyEndometriosisTeam Member

I have same problems and my pains become worse after I go

August 3, 2016
A MyEndometriosisTeam Member

I wake up 2-3 times during the night to go to the bathroom but it isn't a problem during the day...or maybe I just hold my bladder more. Teachers don't get to use the bathroom much. It never occurred to me that it may be related to the endometriosis.

August 2, 2016
A MyEndometriosisTeam Member

Yes i deal with that all the time

August 2, 2016

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