What Is Your Experience With Lupron? Did You Have Bad Side Effects Or Long Term Side Effects? | MyEndometriosisTeam

Connect with others who understand.

sign up Log in
Resources
About MyEndometriosisTeam
Powered By
Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
What Is Your Experience With Lupron? Did You Have Bad Side Effects Or Long Term Side Effects?
A MyEndometriosisTeam Member asked a question 💭

I have severe endometriosis and the doctor wants me to be put on Lupron injections for 6 months (1 injection every 3 months) to shrink and get rid of the endometriosis. I am concerned about the bone loss and long term effects. I have read that some people feel worse on Lupron. I want to try natural ways to get rid of it if at all possible. After Lupron I can then try to get pregnant. I would rather try natural remedies..any thoughts?

posted August 3, 2016
•
Be the first to like/hug
A MyEndometriosisTeam Member

I've read those same things and was terrified before trying it, but after 12 years I was also desperate and willing to be a lab rat for my doctor. I was on Lupron for 4 months, and it was literally the best 4 months of my life. It was the first time I ever lived without pain and it felt incredible. I used it with supplemental hormone therapy (I think it's norethrindrone?) and I couldn't have felt better. I wished I could've been on it forever, but it was enough to get my endo under control and start the Nuvaring thereafter. No birth control worked for me before using the Lupron, and I've been on dozens. I personally didn't have any hot flashes or menopausal side effects. However, I did start the injection a day or so before I started my period, and it was the most unbearable pain I ever felt. I screamed for hours and it was unbearable. My doctor later admitted we may have started at the wrong time.... so be aware of that. My Lupron came with access to nurse advice 24 hours a day, I would check with them or your doctor when the best time to start it, don't do what I did.

It's only a temporary solution, so because the pain and endo comes back quickly after the treatment, we immediately began birth control, continuous, 3-months at a time with a break after 3 months for a period. I use ponstel for the pain every three months, and It's made my life manageable. It's been 2 years since my Lupron injections and I couldn't be happier with being my doctors lab rat. It's worked wonders for me.

posted August 5, 2016
A MyEndometriosisTeam Member

I hate Lupron. It's never are me better and I gained 100 pounds on it! It made everyone in my life hate me (mood swings) and sleeping at night is unbearable because of the hot flashes. I literally had more endo after Lupron because it makes it grow! I've never met anyone that found more positive than negative effects from Lupron. I wish it did work, believe me!

posted August 5, 2016
A MyEndometriosisTeam Member

I also went totally crazy on it. I wanted it out of me. I was on it for 6 months and had terrible side effects and did not have the spirit in me to cope! Because it suppresses your natural personality I just lost myself. What I would try and do is balance the hormones- Google it YouTube it- no fleuoride in toothpaste, a water distiller, no plastics, organic eating, no eggs, no dairy, cut sugar etc. Then try to find an acupuncturist who specialises in hormone balancing. Then I would get rid of ANY chemicals in your house it's called chlorine dioxide, it's in your sanitary wear, toilet roll, bleach sprays, washing up liquid etc- you need to go totally natural- look up the correlation in the study between endo and dioxin/dioxide, it's CRAZY. Also see if you can get hold of a herbalist- make a point of wanting to get your body fighting fit and "balanced" someone has recently told me about probiotics, hemp seed oil, flax seed oil and some other things that help your body actually fight the disease, I'm about to try it so I'll let you know how I go. Anyway, I hope I've helped! Xxxx

posted August 5, 2016
A MyEndometriosisTeam Member

I went literally crazy when I was on Lupron. it made me feel like a completely different person. it almost made me wish for the endometriosis pain rather than what the Lupron was putting me through. I've heard that people had good experiences with it though but I personally would recommend avoiding it

posted August 4, 2016
A MyEndometriosisTeam Member

I had really bad hot flashes I didn't feel like it worked for me. I am trying to conceive now and I only got one monthly injection in January. I had one period in February and have not had one since. But every one is different

posted August 3, 2016

Related content

View All
Lupron
A MyEndometriosisTeam Member asked a question 💭
Lupron
A MyEndometriosisTeam Member asked a question 💭
Orillisa Pill?
A MyEndometriosisTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in