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A MyEndometriosisTeam Member asked a question 💭
Dallas, GA

Every now and then I experience slight-quick twinges of Endo pain directly followed by overwhelming fatigue. The fatigue can last anywhere from 24 to 48 hours.

February 21, 2017
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Answer Summary

Members shared their experiences with sudden twinges of endometriosis pain followed by overwhelming fatigue lasting 24 to 48 hours, with... Read more

Members shared their experiences with sudden twinges of endometriosis pain followed by overwhelming fatigue lasting 24 to 48 hours, with several describing similar sensations around the ovaries, lower abdomen, back, and hips that they struggled for years to get doctors to take seriously. Many community members discussed how treatments like depo injections and laparoscopies often only temporarily mask symptoms rather than cure endometriosis, with some noting that endo frequently returns within a year after surgery and that diagnostic procedures requiring specialist referrals can be frustratingly slow, especially in the UK's NHS system. A recurring theme was the shared disappointment that no lasting cure exists for endometriosis and the emotional toll of managing a chronic condition where pain relief feels temporary and navigating medical systems can be exhausting.

A MyEndometriosisTeam Member

I'm on the depo shot as well and have been for 4 months now. But my doctor has me a laproscopy scheduled June 20th

May 24, 2017
A MyEndometriosisTeam Member

You too! :-)

February 25, 2017
A MyEndometriosisTeam Member

I know :-( take care endo sister x

February 24, 2017
A MyEndometriosisTeam Member

Wow, that seems like way too many steps just to get a referral! Yes, I hate endo, it's the worst and know one seems to have or working on a cure for it. :-(

February 24, 2017
A MyEndometriosisTeam Member

Yes it's very different here I saw a nurse who referred me to the doctor but the doctor must refer you to a Gynaecologist who will then call you in via letter. So without a referral it does mean going private which I definitely cannot afford.
Thank you for sharing your story with me. It seems that no matter what happens we don't succeed with endo!

February 23, 2017

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Los Angeles, CA