Has anyone had positive experiences/results from the Lupron treatment? I'd love to hear them.

Has anyone had positive experiences/results from the Lupron treatment? I'd love to hear them.

My doctor is encouraging me to try the Lupron treatment for 6-12 months. I'm terrified of the potential side effects. Looking for reasons/stories to compel me to try it.

Also, what other non-medical options work well to manage endo symptoms? Which diets? Which exercises? Acupuncture? I'll try anything before that Lupron treatment.

Thanks,

SJ

A MyEndometriosisTeam Member said:

I can't tell you whether or not this will work for you, but I absolutely hated this drug. I was only on it for 3 months, but as I am sensitive to hormones, lupron gave me really bad visual hallucinations- mostly color hallucinations, chronic daily migraines or headaches, made my anxiety and depression worse, and made me very angry and snappy. I just had a constant feeling of not feeling right. I only took it because my surgeon said it would make the surgery easier.

posted over 2 years ago
A MyEndometriosisTeam Member said:

I have been on lupron since December and honestly I don't regret it and will continue it. Before most days the pain was so bad walking was more then an effort. My option was surgery and then lupron anyways, or lupron. If you get surgery you still have scar tissue which can be worse then endo. So I chose the lupron route. With that said, I do get hot flashes and night sweats but it's far better then the pain. I had anxiety and depression which got really bad around my time for a second shot. However after that episode it's back to normal. I'll have to get a bone scan and my doc says I'll have to break from it for a time but for me all of that is still better then surgery or the pain. Hope that helps!

posted over 2 years ago
A MyEndometriosisTeam Member said:

I totally forgot to add the pseudo - menopause symptoms which are exactly what you would expect- horrible hot flashes and waking up in a pool of sweat every night.

posted over 2 years ago
A MyEndometriosisTeam Member said:

Hey, I don't know how severe your Endo is or how well or not well other hormone treatments have worked for you, but I tried everything and had awful side effects with all of them. Then I tried Lupron. While it was a bit difficult seeing as I began in the heat of the summer with no air conditioning with the hot flashes and all, I ended up finding out that neurontin (gabapentin) another drug I used for back problems and sleep just happened to also be used to reduce hot flashes. When I started using that more it became the hormnonal method of bc to help my Endo that I've tolerated that best.

posted over 2 years ago
A MyEndometriosisTeam Member said:

I did try it , it was anything but effective for me not to mention the side effects were just to much for me .... in saying that everyone is different as I have come to learn . if it's out there I have probably tried it i hope if you do try it you have better results but honestly it was a bad experience for me

posted over 2 years ago
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