I Have Chronic Pelvic Pain And Had A Chocolate Cyst Rupture-is This Indicative Of Stage Four Endometriosis? | MyEndometriosisTeam

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I Have Chronic Pelvic Pain And Had A Chocolate Cyst Rupture-is This Indicative Of Stage Four Endometriosis?
A MyEndometriosisTeam Member asked a question πŸ’­

Ever since using paragard in 2012, I started dealing with pelvic pain and ovarian cyst ruptures. The heavy bleeding each month was horrible to the point where I had to use bladder protection underwear. In 2016 I had a severe cyst rupture where the discharge looked like melted chocolate. The two gynecologists ive seen (mine back in IN and my current one in CA) didn't seem concerned enough to suggest a laparoscopy despite essentially being in constant pelvic pain from ovulation to the start of my… read more

posted July 3, 2017
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A MyEndometriosisTeam Member

So with staging of endometriosis, it's staged by how much the endo will impact fertility, not by pain and so forth. Endo is weird in that someone with stage one may have severe pain while someone with stage four experiences no symptoms and finds out they have it when they struggle to have children.

As for your bowel and bladder question, I myself experience some pain with bowel movements but it's not every time. Depending on where the endo is, it can be inflaming digestive organs and causing issue or you may have irritable bowel syndrome. Some people with endo get IC which is when the lining inside of the bladder is inflamed. This could be the source of your pain while urinating but it also could be endo or both or something completely different.

posted July 11, 2017
A MyEndometriosisTeam Member

No, it definitely doesn't mean that you are stage IV.. I recently had laparoscopy in May to have endometriomas (chocolate cysts) removed from both ovaries... unfortunately I went to a specialist more recently because I am still experience pain and he told me that I have another cyst in my right ovary again so I am scheduled to have a second surgery next week, but he told me I am stage III and endometriomas can begin at any stage... so don't worry, pain isn't always indicative of what stage you are... I highly suggested you see a specialist. The first surgeon I went to wasn't and didn't get everything.. which is why I am having a second.. GOOD LUCK!!!

posted July 4, 2017
A MyEndometriosisTeam Member

That sounds awful, I'm sorry to hear you have had so much discomfort πŸ™ You may consider scheduling a consult with an endo excision specialist because a lot of ob/gyns are kind of clueless about endo. The Facebook group Nancy's Nook has a list of excision specialists, so that could be a place to look if you're not familiar with any specialists. Good luck! πŸ’›

posted July 4, 2017
A MyEndometriosisTeam Member

Thank you so much! Also, do you experience pain with bowel and bladder movement?

posted July 4, 2017
A MyEndometriosisTeam Member

Thank you! I will definitely look into that.

posted July 4, 2017

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