Are any of you on any long-term pain management medication/s? And if so, what are you taking please?
My doctor has tried me on a few but nothing's helped so far and I'm desperate to find something to help :( I'm at my wits end :(
I take codeine, cocodamol, tramadol etc when I have flare ups but I'm trying to find a long-term pain management medication/method. Any advice, help or tips would be greatly appreciated! Thank you in advance!
I take 90 mg of extended release morphine a day (with Percocet for breakthrough pain). I find the morphine doesn’t make me as groggy as other narcotics (or the gabapentine which, for me, makes me more groggy than the strongest narcotic). I also take a variety of anti-inflammatories depending on time of the month and pain level.
I also think pelvic floor PT is amazing. I’m still in pain, but it’s had three benefits. 1) My narcotics dose is lower than it used to be. 2) It’s allowed me to be slightly more active and enjoy some of the things, like dance, that used to be so important in my life. 3) After PT, I’m often not in pain for a couple hours. I’ve been in pain 24/7 for a couple years, so those hours are a blessing.
It’s not a perfect solution, but I want kids before having a hysterectomy. (My doctors are deciding if IVF is still an option for me because the endo quickly spread since my last laparoscopy over a year ago—there might be endo in the muscles of my uterus.)
Pelvic floor physiotherapy has helped me heaps! A lot of people with endometriosis have tight pelvic floor muscles, which contributes a lot to the pain you experience. It is important to learn how to relax these muscles, which will hopefully improve your pain. I also use voltaran suppositories ( I a lot of people find it disgusting), but they go straight to the location of your pain. Using them has really helped me manage my pain a lot better!
I use Naproxin. It doesn’t make the pain go away, but it gets it to a manageable level without making me feel like a zombie like the narcotics did.