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Laparoscopic Surgery... Opinions Wanted!
A MyEndometriosisTeam Member asked a question 💭

I have a hospital appointment on the 23rd January to decide if I want to go ahead with the laparoscopic surgery to remove the scarring from my bowel.

I'm nervous about this as I have read how surgery has made it worse for some people and also... The biggest fear, bowel being ruptured!

Has anyone else had endo on the bowel and had this surgery?
Did it help with stomach pains/bowel movements etc?
Would you recommend the surgery?

I know the Obvious answer is have the surgery but I wondered… read more

posted January 15, 2018
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A MyEndometriosisTeam Member

For Endo on the bowel, you need to see a colorectal surgeon. It is important to have the best doctors to get the best possible outcome. A colorectal surgeon with a history of robotic endometriosis removal of the colon is best qualified to do your resection or shaving of the Endo.

posted August 24, 2018
A MyEndometriosisTeam Member

Hi Loves,

Your best bet is to get in touch with some of the BEST excision surgeons (based on your geographic location). My rockstar surgeon is Dr. Ken Sinervo of the CEC (Center for Endometriosis Care) in Atlanta, G.A.. They are quite literally my family; I would go as far to say as he is certainly one of the BEST excision surgeons for Endo in the U.S. and you can catch him and other staff and surgeons on the documentary (which you’ll catch a glimpse of me in as well)! He’s not your typical OBGYN that does simple laps and has to call in an entire team of specialists just to get through one surgery. I have Stage 4 Endo and Severe Adenomyosis, Visceral Hyperalgesia, a “wrecked pelvic floor” as I’ve heard said to my face by at least two of the best PFPT’s in the state of NC by UNC and DUKE, Fibromyalgia, and overactive fascia. I had full excision surgery with Dr. S back in May of 2015 and I felt great for a few months, until I was just one of those too far gone cases that had nerve regrowth after the fibrous bundle was cauterized (it’s supposed to help with the pain greatly) and let me say, the nerve regeneration was a totally different beast. I also had Endo on my bowel and my bowel was actually pushed up and attached to my left pelvic sidewall by those lovely adhesions; he was able to resect (cut away a minute portion) of my bowel and wrap it. I was COVERED in endometrial growths and adhesions. My appendix was also removed because of how bad the Endo had scarred it down. I will say, excision with the right surgeons will save you 80% of your Endo not recurring; however, mine is back with a vengeance and honestly, it’s because I have gone through the trauma, the pain, the mental rampage it takes on your psyche and PTSD from the exponential times I’ve been told “It’s in your head or not as bad as you’re making it out to be.”; “It’s just a period.”, they said. The best quote from ignorant OBGYN’s is.... “But, you look fine to me.”! Don’t you love that one? I diagnosed Myself when I was 10 years old, the symptoms started just before I even started my menses and I was having violent and homicidal outburst where I literally would lock Myself in my closet, because it was the only place I felt safe from MYSELF! And, even then, I would always say that I couldn’t stand being in my own skin. I have a severe case of PMDD (Pre-Menstrual Dysphoric Disorder) that is like imagining your normal PMS and times that by 1,000! My husband has been there with me through it ALL; he’s had to restrain me when I couldn’t control my moods and I would swing at him, he’s seen me at my absolute-stripped-down-raw worst and had to restrain me several times when I would have an excruciating PMDD fit and I would literally claw at my face and skin, because that’s how bad I wanted out of my mortal flesh that to me, felt like I was rotting from the inside out. For 21 years I have been dealing with the trials and tribulations of the wrath that is Endometriosis.

posted August 26, 2018
A MyEndometriosisTeam Member

Super helpful thread! Thanks! Had my 1st surgery just over a week ago and one of my ovaries is attached to my colon. I had no clue there even was a specialist for that kind of thing. I haven’t had my post op yet. It’s on the 4th but I’m checking into what kinds of questions to ask. The doctor who did my surgery did not fix it and one of my family members said she did ablation instead of excision which makes me nervous. I really didn’t know enough going into this thing...

posted August 24, 2018
A MyEndometriosisTeam Member

@A MyEndometriosisTeam Member I'm the worst for reading risks and side affects of things, including any tablet I have to take. Then I concentrate on that rather than what good could come of it.

I think the surgery is the best option. Especially when I'm awake in the middle of the night curled up in a ball from the pain. I don't think I have 100% trust in the doctor I have been aligned to which doesn't help. I don't trust many people at all from personal past experience but a doctor who wants to operate on you should be trusted!

Hope your op goes well to,y doctor moves things along so quickly we could be recovering together! Let me know how you get on x

posted January 15, 2018
A MyEndometriosisTeam Member

I am suppose to get surgery soon because I have endo on my bowel and a colorectal doctor will be present when I get the surgery to remove endo. However I have been on a hormone called Norethindrone since March of this year and for me it has been god sent because I have not had any pain, I am able to have a bowel movement without the straining, constipation and pain that I have been struggling with and also I have not had any periods since and I really like that and dont miss the pain or periods at all!!!

posted September 23, 2021

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