I went for my one year post op appointment today and met up with my gynaecologist- he says that I shouldn't still be having endo symptoms as he removed it and it cannot come back like that (although I've read many stories where it has)
Instead he said he recommends not getting any more excision surgeries for endometriosis until I have a family- he also said that he advises I start thinking about having a family as it could become an issue the later I leave it (if the endo is back)
What do I… read more

I have horrific autoimmune issues with my thyroid, endometriosis, and likely adenomyosis. I already have daily cramps, abnirmal bleeding, and a fever 4 days out of the week. Plus, 90% of my hair has fallen out. I'm in the ER almost monthly with awful pelvic and abdominal pain. I think an IUD could come near to quite literally killing me.

After suffering from endometriosis with a lot of interventions I finally had total hysterectomy which was followed by adhesions and had adhelysis four times but I’m still in pain and chronic pain
Medication makes me survive

Otherwise I have lost count of laparoscopic investigations but I’m struggling with the pain

Now doctor suspects central sensitization

I’m now on lyrica 75 and Cymgen 60 every night

I used to sleep great, but when I start getting endo pain I have a hard time staying asleep. If the tiniest thing wakes me up, that's it, I'm awake. If I take something before bed it wears off before it can help. And I don't always have an opportunity for a nap later in my day. Has anyone found a way to get restful, restorative sleep? Only getting 6 hours of sleep a night almost every night is really wearing me down.

Hi ladies I'm getting kinda worried. Since yesterday I've been getting a after period blood like discharge, even though I already had my period about 2 weeks ago. Is this caused by the endo? Is it even normal?

I usually go to an Obgyn doc, who specializes in Urogynecology and Advanced Laparoscopic Surgery. He isn't very convenient to go to, unless I need surgery or it is for my yearly pap. He also doesn't like prescribing medicine other than birth control. Can a regular primary meet my needs? I've tried pain management, but they seem to just put me on NSAIDS, when I can't take those because of gastritis. I just feel like I'm constantly in pain and no doctor wants to take it seriously.

I was diagnosed my sophomore year of college (20 yrs old) after having unexplained menstrual like cramps that would last for days even when I wasn't on my period. I have a very significant family history of endometriosis and have been on birth control for heavy and irregular periods since I was 15. My first gynecologist said that I was too young and since I didn't have any bowel troubles during my periods it was unlikely (I later realized I did, but I had believed it was normal). My second… read more

Has anyone had the mirena coil inserted for treatment of endo? I got mine put in when i was having my laparoscopy and i havent stopped bleeding... thats been 2 months non stop? I know it can take 6 months to calm down but has anyone else had the bleeding and constant stomach cramps?
Thanks

I was curious if anyone else has ever noticed exercise helps symptoms? I was doing CrossFit regularly and I noticed my cramping, spot bleeding, pms symptoms subside. I noticed when I am heavily stressed they come full force. But doing intense exercise did the reverse.

Hi Ladies

Has anyone ever experienced depression with endo? Is it one of the symptoms? How do you deal with it?