For those who have had a hysterectomy could you share your experience?
I have had excision, been on Lupron, Depo and every pill under the sun. My options are slim and I’m miserable.
Yes I had my surgery with a Nook excision specialist.
Yes I know a hysterectomy is not a cure.
Yes I know I’m young.
Yes I am aware that takes away my option to bear children.
It’s a difficult decision- hence my research and advice seeking.
But I am out of options and I do not want to be miserable the rest of my… read more
I say pray about it and let the Lord lead you. I did not want any more surgeries when I first found out I had endometriosis because I had already had 2 casearian sections and 3 other surgeries due to fibroids. After getting Lupron shots for 6 months I decided to go on and have a hysterectomy. It was the best thing I ever did for my body. I don't want to tell you what to do because you don't have children so that should be your choice. I pray you feel better soon.
I had a hysterectomy at 21, luckily I had already had 1 child. But after 5 miscarriages and permanently bleeding it was the only choice left. Although this was 23 years ago. I would say for me it gave me my life back. Yes I still have endeo, it’s in my bowels. I have a stoma and still having issues. But to not having heavy bleeding for 7 days then have 2 days off then back to heavy bleeding.. it was no life.. it was existing..
I had exhausted all treatment options after decades. The only one which worked was prostrap and I was on that for 16 months before having to come off it due to bone density issues. I was then self medicating pain relief for two years and in crippling pain most days all day. I am married with one daughter who’s 6. After a lengthy chat with my husband I decided the best route would be for a full hysterectomy with removal of tubes and cervix plus ovaries and excision of any endometriosis. I waited 7 months for my date and I’m now 5 months post op. (The surgery was straight forward for me - keyhole and excision of endometriosis behind my rectum. I went in in crippling pain and came out a new woman. Without doubt it was the best decision of my life. I’ve been pain free since.
I would say I am very knowledgable about endo after 13 operations, I failed attempt at IVF (the drugs did not on me & would never) & finally having a total hysterectomy at 35 years old. I am 40 next month & have to say that having a hysterectomy was the best choice for me. I found the surgery itself relatively easy to bounce back from in comparison to some others. The biggest thing is being on the right level of HRT. My gynaecologist put me on HRT after surgery & after a year of hot flushes, tears etc I say an HRT Consultant. My bloods showed that even on the highest dose recommend my oestrogen level was menopausal. She changed tablets and doubled the dose & I have to say I feel great. I see her every 6 months & I am glad I made the decision to have the hysterectomy. I know several girls that had to have a bowel resection & now have a bag because of endometriosis, so despite the heartache of not having children, I do still feel lucky as it could have been worse. If you have any questions, send them to me & I will do my best to answer them x
I just had a complete hysterectomy a week ago, and I already feel better. I have surgery pain, but my Endo pain is gone. I’m 35, I’m now unable to have children, but my husband and I were both affected by the pain I was having, it was taking away from my quality of life and that wore on him too. I know I’m only a week out, but I don’t regret it at all.