Yes, it can grow back. I also had a full hysterectomy in 2015 and since since I still get laps almost every 2 years to remove more endo. It helped me a ton though in other ways. I hope you have many… read more
Hysterecetomy is alone not curative in deep endometriosis if there is still deep endometriosis in lower abdomen, pelvis. So, you need an evaluation for deep endometriosis if your pain still continues… read more
New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder. Any of you who have had a hysterectomy please tell me how long did it take until you could move around at least for an… read more
I had a hysterectomy in June of 2022 and honestly I don’t recall the specifics of when exactly I was able to move around, but I do remember I used my mom’s walker the first month and then as I was… read more
I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main problem (more like… read more
Sorry to hear about your situation with your partner. My ex-husband is understanding of my condition and he is still supportive even though we didn't have sex. I believe education for men and eveyone… read more
My gynecologist told me that she felt a pelvic mass on a bimanual exam that suggested to her that I might have an endometrioma or more on the other side of my vaginal cuff. She also noted a polyp on the vaginal side of the cuff that might be endometriosis. Why would a transvaginal ultrasound and a CT scan find absolutely nothing, when I was in so much pain that I needed hydromorphone in the ER to control it?
Sorry you are still experiencing pain after all you’ve been through, it feels hopeless at times. Maybe the doctor who did your pelvic exam was incorrect….or maybe you have a lesion where they can’t… read more
Im on them now and just want to know what poeple experienced after they stopped the injections. Xx
*these are montly stomach injections for 6 months or 2x over six months. They bring on temporary menopause**
Is that Lupron that makes your body believe that you and perimenopause is that that has so many things done that I have no idea at this point. I’m just going back in time.
Thank you x
I tried 3 IUDs and my body rejected all 3; then tried Norethrindrone and I hated it . My weight changed for the worse and it effected my mood. So I stopped . My doc told me about a newer pill called Slynd . Wondering if anyone else has had experience with this ?
You're most welcome. Incidentally, I'm not sure where you are in your endo journey. Birth control can help, but really they just mask symptoms. It's important that your doctor tell you that it doesn't… read more
Hi I hope someone can help I've been to my GP he did blood test and my estrogen levels are low I'm 47 it's causing a lot of problems down below he has prescribed 10mg of vagifem weekly to help I was a bit concerned because I said to him I taught that estrogen feeds endometriosis he said it was fine because it is a low dose and I'm not taking it by mouth so it's just helping the problem below has anyone tried this before as I'm getting really depressed cause I've tried all of the creams and… read more
Yes I was talking a low estrogen pill orally, it made everything so much worse than it would have been if I was just using my progesterone implant. The implant wasn’t controlling my bleeding so we… read more
Hello. Anyone menopausal and still having pain? My doctor is convinced that at 51 my endo pain will decline soon and took me off my Norethindrone daily maintenance and Mirena IUD. Crashed and had severe cramps for 3 days. Still having pain in my right side. Hoping the doctor is right, but after 30 years of dealing with pain (post a confirming laparascopy surgery in my 20s), I still feel dismissed and unheard. Thank you.
Thank you. I will look into a second opinion and research gynecological surgeons in my area (San Francisco). It's been a tough road to get a good recommendation.