Hello @A MyEndometriosisTeam Member ! It sounds like your doctor is not going to be the best person to take your MRI to. I would suggest finding a vetted endometriosis specialist on Nancy's Nook (Facebook) in your area if you haven't done that already. It's a pain to find a new doctor, but in this world, you have to keep "firing" doctors until you find the right one. As for getting the MRI read, you need a good radiologist who is trained at reading MRIs for signs of endometriosis. This is a VERY new field and there are so few radiologists specialized in reading MRIs for endo. My sister is a radiologist resident at Cleveland Clinic and her attending is doing research and presentations on this specific topic. Even the best readings by the most skilled radiologist specialists will only be able to identify endometriosis with a max of 30% accuracy. Some endometriosis gynecologists who specialize in excision surgery read their own MRIs in addition to reading the report of a radiologist they trust, but as I was told by my gynecologist, he only uses MRIs as a preliminary read because it's still not the most reliable way to identify endo. So, when he performs surgery, he still looks in as many places as possible. I hope this helps! My opinion redux: Find an endo specialist who is a vetted excision surgeon and ask them to either have the MRI read by a radiologist they trust or ask them if they read their own MRIs.

Mentioned Users

A MyEndom...

MRIs aren't conclusive for diagnosis, so it may be completely normal. Birth control helped me for about 9 years, but according to my specialist, it is temporary if you have severe disease.

@A MyEndometriosisTeam Member This is so incredibly helpful! So much information I can definitely use and I feel less anxious about this now. I'll check out Nancy's Nook and may even ask you for the contact info for the person your sister works with. I'm now thinking I can simply send the images so i don't have to worry about finding someone good close by.

I did not know about the 30% accuracy either.

Thanks again!

Mentioned Users

A MyEndom...

You can send them to an endo specialist!!

I dont have an answer to this, bur i am in your same sitaution. The onky thing they seem to offer me is birth control and i dont react it to well i get in severe pain and end up in the ER. So you are not alone, but i wiuld send my MRI to anyone that is willing to view it more opinions cant hurt ❤️