My gynecologist told me that she is certain I have endometriosis as well as pcos, with all my symptoms fitting them perfectly. But she also informed me that it would require surgery to confirm it so that I can get the treatment needed. I can’t take time out of work or college to do the surgery and life is miserable living it in pain and sleeplessness all the time. It’s not just a matter of missing out on work or school, it’s the money too. I can’t afford to be off more than a day, and I’ve been… read more
I can't answer why but I agree that it is ridiculous and unfair. I had the discovery surgery just to get told "yes you have it" and had to have the excision surgery 3 weeks later. Such a waste.
Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more
I've been on visanne for 6months. Almost 4months having this spot/slight bleeding. The next day right after finishing 6months taking visanne i got slight period. I dont know if it is normal. My endo… read more
was wondering if it is normal to still be in a lot of pain a week after biopsy, i am in pain with the endo but this seems to have aggravated things i cant stop peeing either bladder feels so heavy and im having to get up during the night to use toilet. my doctor seems dismissive and i feel he doesnt take me seriously i am taking painkillers and ibuprofen but still in pain
Hi
I've also had a biopsy done on Monday , it's also brought my period on a week earlier , cramps are terrible and my bladder feels full all the time ,need to constantly use the toilet ....my… read more
My gynecologist told me that she felt a pelvic mass on a bimanual exam that suggested to her that I might have an endometrioma or more on the other side of my vaginal cuff. She also noted a polyp on the vaginal side of the cuff that might be endometriosis. Why would a transvaginal ultrasound and a CT scan find absolutely nothing, when I was in so much pain that I needed hydromorphone in the ER to control it?
Sorry you are still experiencing pain after all you’ve been through, it feels hopeless at times. Maybe the doctor who did your pelvic exam was incorrect….or maybe you have a lesion where they can’t… read more
I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main problem (more like… read more
Sorry to hear about your situation with your partner. My ex-husband is understanding of my condition and he is still supportive even though we didn't have sex. I believe education for men and eveyone… read more
Hello, I wanted to speak to people that have been diagnosed and how they knew it was endo. I've been going to the doctor due to lower left abdomen pain that has been going on for a year. Some days it's worse than others but when on my period the pain in my entire uterus and rectum is really extremely bad (for about 5 years now) It doesn't feel like cramps and sometimes I feel like I'm going to faint or like something is trying to come out of my because of the shooting pains but now my lower left… read more
I hope they find some answers for me when I see the surgeon. She's also an endomitriosis specialist so I'm really hoping they do everything they can to figure out what's wrong with me. I'm tired of… read more
Im on them now and just want to know what poeple experienced after they stopped the injections. Xx
*these are montly stomach injections for 6 months or 2x over six months. They bring on temporary menopause**
Is that Lupron that makes your body believe that you and perimenopause is that that has so many things done that I have no idea at this point. I’m just going back in time.
My leg that was swollen is the same but the lymphatic massage has made my ankle swell up. The masseuse says she’s never seen it before which isn’t great to hear. Could my endo be causing an issue with my lymph drainage? I’ve also put on weight recently quite suddenly. Slightly panicking.
Thanks so much. Sorry I’ve just seen your reply. What are you doing to manage it now? I’m trying to manage with diet. Had another MRI last week so waiting to hear what’s going on. Having one once a… read more
Hysterecetomy is alone not curative in deep endometriosis if there is still deep endometriosis in lower abdomen, pelvis. So, you need an evaluation for deep endometriosis if your pain still continues… read more
New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder. Any of you who have had a hysterectomy please tell me how long did it take until you could move around at least for an… read more
I had a hysterectomy in June of 2022 and honestly I don’t recall the specifics of when exactly I was able to move around, but I do remember I used my mom’s walker the first month and then as I was… read more