New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder. Any of you who have had a hysterectomy please tell me how long did it take until you could move around at least for an… read more

Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more

Hello. Anyone menopausal and still having pain? My doctor is convinced that at 51 my endo pain will decline soon and took me off my Norethindrone daily maintenance and Mirena IUD. Crashed and had severe cramps for 3 days. Still having pain in my right side. Hoping the doctor is right, but after 30 years of dealing with pain (post a confirming laparascopy surgery in my 20s), I still feel dismissed and unheard. Thank you.

I'm 17 years old right now and have been dealing with chronic pain(abdominal and migraines) since I was 12. It started with dually migraines and then went into daily nausea. I went to every odctot possible and they couldnt figure out what it was. I have been in the ER too often to count. It went over too extreme abdominal pain more in the upper area and then in the lower area also. I was checked for gallstones through ultrasound and blood tests. I also had a CAT scan done and two upper and one… read more

Hi I'm on prostap 3 injections at moment to try to suppress the growth of the adhesions. I've had stage 4 endo most of it removed 12 month ago. Including large cyst and ovary and tube on my left side. I'm wondering if anyone as had endometriosis come back after a hysterectomy. If so how severe was symptoms and how much did it spread. If any one got any info I'd be please too know and which type hysterectomy is best to get rid of endo. I am aware endometriosis not a cure for endo just my… read more

I havent been officially diagnosed i will be having a laparoscopy surgery done on Jan 6th. I got my period last Friday and the pain was really bad the first day and i bled really heavy friday and saturday but then it stopped. Now that last 2 days i have been having really bad back pain and what feels like non stop muscle spasms and sciatic pain. The OBGYN i am seeing prescribed me Naproxen and Flexural for the muscle spasms and i went to urgent care yesterday morning cause with all this pain i… read more

Does anyone else have problems with endo & urine leakage? I find myself leaking wee a lot. Currently waiting on next surgery for extensive endo

What resources did you use to find a good surgeon? Were you worried about their skill before you went under? How did you evaluate them to feel comfortable with them? I’m developing technology for surgical skill performance tracking and am curious if this is something that would have helped you when picking a surgeon. My sister had to have endo surgery after struggling with infertility after baby #1 but is now pregnant with #4! I am particularly passionate about helping women find good surgeons… read more

Hi guys,

I had my lap to remove stage 3 endo by excision just over two months ago, since my hormones switched back on after the decapeptyl, I have had worse pain but similar and in the same places as before my lap. Will it ever stop? Has anyone had experience of this and fully recovered? feeling a bit hopeless right now 😞