I am so sorry that all of this is happening to you. The only way to actually diagnose endometriosis is with a laparoscopy, so I have no idea why the doctors are saying this! You have to make sure that you are seeing reproductive endocrinologists as many OBGYNs do not have the surgical scope to make such medical diagnoses. Also, when you are looking for doctors to do this surgery, you want to try and find one of the top either in your area, or in general if you can: Nezhat and the family are fantastic doctors. I am not sure where you live as I haven't looked at your profile yet, but so many actually travel to different states for surgeries. Are you taking estrogen alone? If you can take a combined low dose pill you should, I never do very well on estrogen only treatments, in fact I cannot take it. Synthetic hormones don't do well. You can also try natural progesterone (synthetic progesterone gives me tons of side effects). Do not take any anti-depressants or Lupron until you actually get a laparoscopy. Anti-depressants are covering up an issue and they don't know the root of the problem; Lupron may not even be needed or the best approach. So, I think the first think you should do is find a good reproductive endocrinologist and make an appointment ASAP. Hope this helps!

Yes, I have endo and adhesions on my liver too. The dr said it’s too complicated to remove and to just leave it, as it’s high risk for complications. However I went to a few other doctors because I was so worried about it and each doctor told me different things. I’ve just left it because it’s not casing me any problems yet.

@A MyEndometriosisTeam Member Do you mean on here or in general? I am going to get my third surgery FINALLY with a top specialist. The entire family is amazing, Dr. Nezhat. They’re in California, New York and Georgia and since I moved from CT to NC I’ll be seeing his brother (the main office is in California) the beginning of November. I also saw Dr. Seckin as a consult in New York City a few years ago, but I didn’t feel that his office was as flexible & were a bit more concerned with money than trying to treat the patient. Where I am going now, the cost of the surgery goes along with the severity of the case; at Seckin everyone paid the same amount no matter the length, severity, etc. However, Seckin is one of THE top Drs anywhere. So you can consider that. Take a look at this link. http://endometriosis.org/resources/articles/fin...

And here: http://expertscape.com/ex/endometriosis/c/us
Hope it helps!

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I’m curious. Is there a list of good specialist somewhere?

@A MyEndometriosisTeam Member Sorry it’s been a minute for my response. I have been taking some time away from the many forums I’m on for various health concerns (RA, ENDO, migraines 🙄blehhh) But i wanted to know if you got any answers from your surgeon on why she didn’t wish to do the laparoscopy & her record? I have actually secured my own surgery with Dr. Nezhat in ATL (his brothers are in Cali & Nyc) So i am soooo looking forward to it. My previous surgeries were done by a specialist but not THE specialist so I’m praying this will be the LAST. Just to clue you in, too—the top specialists themselves don’t take insurance. So you’d have to pay out of pocket. However, I do know that the hospital the surgery is in takes insurance so that can offset part of the cost (they explain it better). And they all mostly accept state insurance. And YESSS. Progesterone of all sorts either synthetic or natural will start messing with your cycle bc it’s what Drs give for amenorrhea. Although still, natural is best, after about two months I was too hot, too swollen, and had too heavy bleeding. Nobody has time for THAT! I see I didn’t mention it: I’m currently on my second go of Letrozole (Femara) 2.5mg daily and Yaz (any low dose will do but Yaz has a diuretic & treats pms symptoms). That combo is an excellent treatment but you have to get a dr that knows it. When I moved to NC the first Dr hadn’t a clue & it was a mess & it just started a downhill of hormonal issues & migraines that landed me admitted to the hospital... Do keep me posted! :-)

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