Sorry for being a downer here lol, but sometimes I feel like when I have good days I ruin it by spiraling into thoughts like “there’s no way I actually experience as much pain as other women” or “Im just over exaggerating” or get anxious and think “what if I’m just placeboing myself”. It’s like just because I have a couple good days every now and then, I feel like my problems aren’t valid.
Ugh we get written off and treated like we're "crazy" so many times that I think we start doing it to ourselves-- and I'm right there in that boat with you. Pain is a subjective experience and so many factors go into an individual's pain experiences. It's really impossible to know how much others experience and even if we could, it doesn't make your pain any less real or valid. We have to remind each other of that 💛💛
I had the same thoughts before having Laparoscopy. I even wrote that on the Group that I am worried to have no answers after Laparoscopy. I feel good days and say to myself " you are good now , why go for Laparoscopy , they won't find anything , you are imaging , it is all in your head as the 8 doctors said.
After Laparoscopy , this has changed , they found endometriosis on Uterosacral ligaments , ablated it , removed 4 subserous fibroids. And , after they told me , i am sure i wasn't imagining.In Endo , yes, you have some good days and lots of bad days. Believe your self. Believe your body . you aren't exaggerating anything . You are really sick and Endo-pain is really bad. Care for your self
Yes I'm v much the same. Have just got an appt to see about having a hysterectomy for my adenomyosis and am having a couple of good days and getting lots of self doubt
Same