Hi everyone, I am 51 and have been diagnosed endo 4 for many years, having ovarian cysts on both side, they are about 4 and 5 cm. I tried IUD before but only made it worse, so that was taken out. Lately the pain has been increased so I am revisit the idea of surgery. My doctor suggested me to remove both of my cysts and overies, but I done some research, overies are important even I am perimanopause. But only removing the cysts would be very difficult as my condition with Endo, so it won't be a… read more

My gynecologist told me that she is certain I have endometriosis as well as pcos, with all my symptoms fitting them perfectly. But she also informed me that it would require surgery to confirm it so that I can get the treatment needed. I can’t take time out of work or college to do the surgery and life is miserable living it in pain and sleeplessness all the time. It’s not just a matter of missing out on work or school, it’s the money too. I can’t afford to be off more than a day, and I’ve been… read more

Hi am 23 years old. I am having severe period pains since I was 14. I visited the doctor recently and he says i have endometriosis because i have all the symptoms. He gave me two options
1. Laproscopy to be 100% sure
2. Medication
Ultrasound showed nothing so I decided to go with the medication. He gave me two options in medication
1. Birth control pill, Mercilon low dosage
2. Hormonal treatment, Visanne
I can not afford visanne so i decided to go with birth control pill Mercilon.
I want your… read more

I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main problem (more like… read more

Hello all
I recently have gotten insurance for the first time (I’m 26) since I was 17. I have always had horrible periods. Heavy bleeding. Uterine wall shedding the size of my hand, extreme pain where over the counter meds don’t work, ulcers from the over the counter meds, pelvic pain even when I’m not on my period, fatigue, and I even tend to loose consciousness (which they claim
Is from the pain, but I have done so without any so 🤷‍♀️) In high school the doctor told my guardian I was making… read more

Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more

I feel like I am going crazy. I have asked my doctors again and again to check if I have an autoimmune disease but no one takes me seriously. Well, I got bloodwork done and of course I test positive for autoimmune antibodies. But wouldn't it make sense for people with endo to have positive autoimmune antibodies? Think about it. We have uterine tissue growing in places it doesn't belong. Can't your body recognize that as foreign and start attacking it? Obviously, I'm not a doctor but it just… read more

I had emergency surgery in 2015 for a ruptured cyst and a tear in my ovary. They discovered endometriosis.

Fast forward to now and I'm back in the UK. I had a diagnostic laparoscopy in February and was told there was no endometriosis but I've got to wait until May to see the gynaecoloist.

My GP sent me for an ultrasound on 20th March for a separate reason but the sonographer found a 5cm cyst on my right ovary.

My GP phoned me yesterday and said the cyst is an endometrioma and that typically… read more

Hi I'm new here and really need some help

I have painful periods, heavy and irregular. Bloating, constipation, diarrhoea, pain with bowel movements sometimes, frequent need to wee, nausea, headaches all the time. Constant dull ache in my lower stomach and back. But sometimes get shooting pains in my right side.

My ultrasound scan came back negative but I'm still in pain and feel tired all the time too. I'm seeing a gynae soon but I'm scared I might need a laparoscopy.

Please any help and… read more