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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Was there a specific time or symptom, or issue that caused you to know something was wrong or not ok?

And once you knew how long did it take for you to get a diagnosis, and what were some of the issues you experienced in trying to get diagnosed?

September 10, 2019
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A MyEndometriosisTeam Member

I was super sick for about 3 months with terrible stomach pain. I went to my gyno and after an evaluation she recommended seeing a surgeon. The process went pretty quickly after that to get to surgery.

I have other health issues and I learned that it’s always best to have another person with
You to hear the information and you must advocate for yourself! You know your body best so you have to fight for the treatment that you deserve! Good luck and always here to talk!

September 10, 2019
A MyEndometriosisTeam Member

It took me seven months from the date of my first medical appointment to have my lap and get diagnosed. I wasn’t getting pregnant so I asked to see a fertility doctor.

After a few ultrasounds (cysts were shown each time) and ovulation tracking (observations appeared to show that I wasn’t ovulating) I was scheduled for my lap. Stage IV endo was discovered at that time.

September 10, 2019
A MyEndometriosisTeam Member

I think for me it was the first time I threw up from the pain in my early 20s. Another turning point years later was when i was in so much pain i couldn't sit down- that led me to using CBD. Finally got diagnosed this year at 31.

September 10, 2019
A MyEndometriosisTeam Member

I was suffering with leg and foot pain constantly. And my bladder was acting up whenever I had a period. I also had other symptoms. My type of endo is the s type but I have heard of cerebral endo.

August 14, 2020
A MyEndometriosisTeam Member

The day I found out that my two cysts were gone, but I had abdominal pains from hell. Later that day I vomitted, then fainted. thats when I went to ER

September 13, 2019

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