Undiagnosed Endo? | MyEndometriosisTeam

Connect with others who understand.

sign up Log in
Resources
About MyEndometriosisTeam
Powered By
Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Undiagnosed Endo?
A MyEndometriosisTeam Member asked a question 💭

Heyya, so Endo runs in our family, over the last 6 years I have constantly been in and out of hospital trying to diagnose it
I'm on the pill 24/7 to have no periods but I still get the pain, which sky rockets every three to six months. I've had two laperoscopies, doctors have said I don't have Endo, just a tilted uterus and a small blood clot and fluid in my fallopian tubes...but that doesn't explain the regular pain, the heavy pressure in my uterus, the bloating and all the other symptoms,… read more

posted September 29, 2019
View reactions
A MyEndometriosisTeam Member

@A MyEndometriosisTeam Member I just watched the video. Thank you SO much for sharing, I looked over my pics from my lapro versus the pics he showed and my pics are NOT good. I was just gonna deal with the pain forever and not get a second opinion but now I’m definitely going to get one. Again, thank you! I don’t feel as crazy as I did. Have a great!

posted October 9, 2019
A MyEndometriosisTeam Member

I had a lapro done in May and my doctor didn’t find endo. She said I could have microscopic endo. My pain has gotten worse and I feel like there is nothing to do about it. I no longer want to go to the doctor for anything because I feel like they just tell me I’m fine and send me on my way.

I hope you can get some answers. ASAP.

posted September 29, 2019
A MyEndometriosisTeam Member

Hello ! I'm sorry you're going through that suffering. I'm no doctor obviously but I have adenomyosis which is endo on the inside of the uterus. You may look into that, but I think your surgeons would have diagnosed it during your laps ? Good luck to you and keep us updated !

posted September 29, 2019
A MyEndometriosisTeam Member

@A MyEndometriosisTeam Member I'm so happy I could help. Your pain is real and you deserve to feel better. I hope you finally get a diagnosis. Have a great day too !

posted October 10, 2019
A MyEndometriosisTeam Member

@A MyEndometriosisTeam Member thank you for this. No, not an endo specialist, it was OB/GYN doc who performed the lapro.

posted October 9, 2019

Related content

View All
Has Anyone Been Able To Get Pregnant Naturally After Excision Surgery ? Would Love To Hear Your Stories!
A MyEndometriosisTeam Member asked a question 💭
Does Anyone Have Endometriosis And Hashimoto's?
A MyEndometriosisTeam Member asked a question 💭
Butt And Lower Pain During Sex
A MyEndometriosisTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in