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A MyEndometriosisTeam Member asked a question 💭

Hey there!

I’ve been worried lately... I have 2 cysts (1 on each ovary) about 3.5 cm each that my doc says are endometriomas. This is based on ultrasound only, never had a lap. He also said if they get to be over 4cm he’ll want to remove them because of the risk they could be cancer. Should I ask for a lap anyway? Its my understanding that ovarian cancer is hard to detect and once it’s been diagnosed it’s generally in the late stages...

January 3, 2020
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A MyEndometriosisTeam Member

I’d insist on the lap, especially if you’ve never had one... but I would suggest finding a doc who can do excision as well.

Did they test your ca125 levels, too? Are they doing any other testing, like mri? I had a huge endometrioma (actually two in one) in the same spot. They had the same concerns but thankfully it was Endo, not cancer.

January 3, 2020 (edited)
A MyEndometriosisTeam Member

Yep, if it’s high, something is going on.. but not necessarily cancer. If it’s low, you may still have cancer.

January 4, 2020
A MyEndometriosisTeam Member

CA125 is kind of a stupid and irritating test. It stands for cancer antigen and the level can be high in women with endo and no cancer and low in women who actually have ovarian cancer... I don’t know exactly why they use it. My level was slightly elevated. But again, no cancer.

January 3, 2020

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