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Hysterectomy Stories

A MyEndometriosisTeam Member asked a question 💭
Mackay, AU

Ladies who have had a hysterectomy at a young age share your stories, the down time from surgery, and your recovery and an issues months or years after surgery?

February 7, 2020
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A MyEndometriosisTeam Member

My docs have been absolutely useless since the hysterectomy and the current ones don't even want to do anything for the prolapse cause they're scared of doing more surgery on me given how the hysterectomy worked out. I'm still glad I did it cause I didn't want kids and it's a very traumatic subject to me that I wanted complete control of myself. However, this has been a hellacious road. One of the things I didn't expect after a hysterectomy is how docs treat it like it's the final treatment and if you had a hysterectomy...welp, nothing they can do for you now. That's it. It's bullshit, but every doc I've met since then looks at me like "why are you here then, if you already had a hysterectomy?" One of them actually said that to my face. Excision wasn't even an option. Since the hysterectomy, I've tried nerve blocks (one with success and two with waay worse results than when I began). Nerve blocks seem to work only of you have the perfect doc who knows how to do it. One of them literally argued with me when he stuck me with the needle and I said the needle felt like it hit wrong and it was near a blood vessel. He muttered something like "it's fine. Just let me do my job". He wasn't even halfway through his sentence when the machines erupted in an alert that he'd nicked a blood vessel. What a schmuck! I also used to be on vaginal Valium after the hysterectomy. It helped me a lot with falling asleep, but some doc had to have a coniption about me being on a controlled substance. I kept calling to get it refilled. They kept saying they would...then, when I was on my last pill in the prescription, they told me to make a video appt and then told me they weren't going to refill it. That's it. Cut off abruptly just like that. I was still working at the time, still had to go in the next day. Hadn't slept at all, ended up passing out and crashing my car, totaling it and getting a fucking DUI of all things out of it. The DUI was a year or two ago. Now, I'm 30. Funny, it's only NOW that I've started drinking heavily cause I have nothing else that even remotely helps and all docs refuse to do shit for me since the hysterectomy.

July 4, 2023
A MyEndometriosisTeam Member

I had my hysterectomy when I was 23. It's been 7-8 years and I am still in horrible pain. Sex is awful and I avoid it at all costs. I have no libido and in the first 6 years after the hysterectomy, anytime I would get sexually aroused, I immediately felt like someone kicked the shit out of my belly with a steel toed boot on. I would just double over and cry. This past year I got diagnosed with a complete rectal and vaginal prolapse also including the bowel somehow. I was in an insane amount of pain just before my hysterectomy and of course my period hit that morning too. When I woke up from surgery, same pain + surgery pain. I've had clit pain I can't even describe since then and very sharp pains internally that I can't ever find comfort for. Within the past few years I've felt like there is a tight string pulling from the inside of my vagina up somewhere internally and every time THAT particular pain hits, it drops me to the ground no matter what I'm doing.

July 4, 2023
A MyEndometriosisTeam Member

No i still cant click it or copy it all good

February 8, 2020
A MyEndometriosisTeam Member

I cant click the link for some reason 😕😕

February 7, 2020
A MyEndometriosisTeam Member

Under 30, im 25 xx thank you for sharing your story gives me hope

February 7, 2020

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