I had a hysterectomy for adenomyosis in August and had excision at the same time. Before my surgery, I had chronic “adeno/endo belly” but this is my first flare post surgery. Does anyone else have endo belly post hysterectomy? I always assumed it was my uterus from the adeno.
@A MyEndometriosisTeam Member that’s my constant fear, too.. this is definitely an endo flare but it feels different.. like literally hot/burning but not as bound tight (if that makes sense) like the adhesions did. I’m also nauseous, which really sucks.
I do still get mild Endo belly every now and then after the hysterectomy and excision. I have yet to figure out what contributes to it. I’ve cut out gluten and dairy, for crying out loud! I am weaning caffeine. My acupuncturist thinks I have SIBO and I’m working on getting that tested; maybe that’s worth exploring with your doc?
Sorry that you're dealing with that, @A MyEndometriosisTeam Member! Yes, I have Endo belly too. Not always, but it's still a pain. I hope that this flare passes quickly and doesn't get too bad!
Are you constipated at all? From my personal experience in the last few weeks I can tell you that constipation can give you bad pelvic pain and bloating very much like endo pain. Endo can also cause constipation so I guess it’s kind of a mix of things. Idk if that’s the issue but I thought I’d throw it out there just in case it helps!
I went a year and a half after my partial with no symptoms, but the endo belly came back as did the rest of my symptoms.