I have been waiting 9 years for a diagnosis and I haven't had an MRI but am waiting for a possible laporoscopy but it could take months to hear back, how do I go about an MRI to maybe see if that can confirm endometriosis.
All I gotta say is fight for your diagnosis! After previous Laproscopy and operations they still didnt find anything... until sept 2023 I went to the emergency for severe pain and vomiting they ended… read more
Okay that makes sense I guess I just have to wait then!
Thank you for taking your time to share your experience 😊 xx
Do you deem it safe to do the Covid 19 vaccine ? Or will this have any impact on the endometriosis?
Got 2 doses of Pfizer and no issues, just delayed ovulation after the 2nd one which seems fairly common on my fertility app (depending what time of your cycle you get the dose) 🙂
(22, stage 4 Endo as well as other things)I just had my second laparoscopy last week. I had a endometrioma as big as a grapefruit on my bladder(just as big as the last one they removed 2 years prior) I’ve been peeing blood off and on but they said it was normal. I also had 2 more cysts the size of a orange they removed. Also found out my fallopian tube is somehow unattached and wrapped around my ovary as well as connecting to my rectum which has been causing me to bleed from my rectum the last 2… read more
I'm so sorry to hear you're going through all this
The important thing is to make sure you have a doctor/surgeon who is helping you through this and to make sure they're doing things according to… read more
You're welcome x
I have been ofF Visanne for a month now and i feel better than ever before. I started my cycle on the 8th of May and i havent experienced any pain or heavy flow.Has anyone had a similar experience ?
Yep exactly 💯
And there's always other options out there like PT, surgery, and dieting to help us out if you don't want the pill
The pill is one hundred percent detrimental to our health no matter how… read more
I started at 5mg but am now at a max dose of 15mg. I’ve been cramping intensely and bleeding for the last 15 days. The blood is dark and smells bad.
I reached out to my doc last week and she advised to treat with heat/ibuprofen.
When I had my MRI in March they identified a large cyst (42mm) in my uterus. I’m curious if it could possibly be leaking? Or if there is something else here that I’m missing.
I am seeing a specialist. She’s just a very highly sought after surgeon and I don’t always get answers very quickly, in this case a couple of weeks. Do you have an endo doc who isn’t also a surgeon… read more
Hi guys, the consent form the NHS requires me to sign, how can I ensure they DO NOT remove any organs at all, (unless obviously they injure badly and it's dead)?
Thanks so much Edwinia xx
I don't think it works as an infection but it's more like a disease that can continue to spread, and if you're symptomatic, those symptoms can get worse and worse and eventually kill off some things… read more